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Or that there was a decrease in another activity/"thing that caused exertion" that came at the same time, for example getting a more stable economic situation with disability payments.

@dave30th @Caroline Struthers The official story for Cochrane moving is lack of funding to NIPH.

And so we will have a number of sick children/adults where the food intolerance/allergy is not accepted and they are to be brainwashed into denying how their bodies react to certain foods? Great.

That would be correct. Cochrane Norway has moved from FHI/National Institute of Public Health where Flottorp works to "Høgskulen på Vestlandet". Physically not that far away from University of Bergen (at least its main campus) so only backwater in that it's not a "proper" university in Norway...

And if you were to have experience, you will be told (even by healthcare workers) that your worry is due to your experience alone not due to actual cause for concern.

I've seen similar accounts as the Lupus one from patients with inflammatory bowel disease.

I think Flottorp and others at FHI at one point (I think as part of the whole issue with getting the Lightning Process trial through the ethics board) used their strong defense of the Cochrane review as a way of showing how they stand up for evidence based medicine.

I love ours! I got rhinititis during pregnancy, especially in the morning, and my nose was much less stuffy since we got an air purifier in the bedroom (we also vacuum and keep dust down by not having clothes and books out in the open, but in drawers/behind glass dors in the bookcase).

I was talking to some non-Norwegian friends yesterday about reverence for doctor's in different cultures and I was reminded that in Norway we have the "superhero" doctor surgeon Jonas Fjeld from ~1920, that was made into audio plays in the late 1980s-early 1990s. Around the same time we had the...

I was so happy when Al-Aly showed up in the middle of that text as at the beginning I was worried Flottorp would get to tell it all her way. Too bad she still got the last word, but Al-Aly was good in the middle :thumbup: This part: Is tragicomic seeing she mentions lightning process.

Maybe journalists could start interviewing Kunst instead of Reme when they need someone from psych at UiO. I'd like that very much!

Were you also told to tell others how you recovered? I remember that has been mentioned by other Landmark course participants.

Yes, thank you! :)

I have a red light therapy device. To me it feels like taking a hot shower, just without the water. I'm not sure it has done anything for my ME, but it has contributed to PEM (though I have to stand up to use it, so it could be that stationary standing upright while using a device that helps...

Old wine in new bottles ;) @Kalliope Do you have the link to the patient participation info, where the therapy is explained? I remember it was shared on Norwegian social media a while back.

@hibiscuswahine There is already an ongoing study at Oslo University on LC and a «mental training programe» where participants are told (among other things) to look in the mirror upon waking and tell themselves they are healthy. By people from the fatigue consortium and COFFI. It’s called...

For me constant temperature (not too hot) is fine, but going in/out of buildings in winter going from a heated area to cold is taxing. Around here the difference in temperature can be ~40 degrees C in winter between indoor and outdoor, though I'm not sure if how large the difference is important...

I'm also one that struggle to see how one can avoid PEM for such a long time period, as life happens and things can cost more energy despite the best planning in advance due to external causes. I just wanted to chime in that it's not necessarily the PEM threshold that is lowered, but that one...

@chillier I don't think someone with G93.3 necessarily is more severe. If you need contact with the specialist service or not during the process of getting an ME diagnosis would depend on many factors. For me, I had been ill for years at various levels of functioning, with different referrals...

Quoting my post from earlier in the thread: