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I couldn’t tolerate amitryptaline either - even the smallest dose left me like a zombie during the day. Pregabalin and Gabapentin were horrible as well, dizziness, nausea, worse than just normal ME. Tried spray on magnesium but not sure it had much effect. Melatonin is a miracle for me. I get...

Daily Mail article about a girl - “ diagnosed with functional neurological disorder, or FND. It affects the central nervous system – and, for decades, has been dismissed by doctors as being ‘all in the mind’. And that leaves FND patients’ fighting to be taken seriously, in a similar way to those...

This place lets you order online but you need a prescription. They used to do a telephone consultation service if your gp wouldn’t prescribe, but looks like they don’t now. http://www.dicksonchemist.co.uk/consultation/default.aspx

I had the same issue with amitryptiline and couldn’t wake up even on the lowest dose. I was then given pregabalin and gabapentin but had nasty side effects - dizziness, feeling really weird, can’t remember the others at the mo but they were enough that I didn’t want to carry on. Also the thing...

I’m sorry you got so many zaps but it gave me a good laugh out loud moment imagining you trying to get the charger off safely. Maybe it is a tactic to give heart rate jumps to make the monitor worth having!

Is there going to be the same thing as before where the donations were multiplied if given in the last three days? edit to tag @dave30th

This post on the BBC was dated 22 March 2018 but this tweet link today bagged another response from the Prof

Just following up the initial tweet to include some interesting responses. I seem to have gone tweeting mad today!

In response to the Danish newspaper Politiken article:

Sharpe's full speech starts at 23.00. Not listened to it yet tho

He is speaking at an event in Oxford tomorrow so maybe he is trying to come up with a story to tell people how badly he has been treated

You should. It is so short it is more of a non event, and is very embarrassing for Sharpe - the fact that is was so short, that they did query him and that they couldn't be bothered to do anything else around it so that he could talk about it for longer than a couple of minutes. It very much...

Sharpe said that there are treatments for PWME and that the studies have been replicated at least a dozen times.

Maybe they are waiting to release it at the same time that there is any news about the Bristol investigations. That way they could then say that yes there were some concerns raised but they were highlighted by this "Dr journalist" that has been harassing researchers etc, therefore we don't...

Not sure if this is relevant but there has been an updated protocol document added to the NIHR FITNET page. It is dated 22 Jan and is version 6 when you open the document. At the end of the document there is a table summarising the changes with each version. The changes made for V6 were done...

If you are referring to my post I was not part of the trial. I had these tests as part of a medical assessment for an insurance claim. I had no idea why this was the only physical test they did and apart from reporting the results they made no comments on conclusions from them, so fairly...

In the UK you have to get LDN from a pharmacy in Scotland. Ideally your GP writes a prescription and then you get it from them. I think it costs about £30 a month. If your GP won't prescribe it then I think they can arrange a call with another dr who will , which you pay for. Not entirely sure...