There is a huge amount of detail on the Frown at SMILE site - they seem to have dissected everything that was available at that time. I can't process it mentally at the moment but if David Tuller is still looking at this then it might be worth passing the site link on so that he can see if there...
Someone did write a letter to the ethics committee about it back in 2010, it's quute long so I will just put the link here https://frownatsmile.wordpress.com/2010/10/10/letter-to-ethics-service-re-smile-october-2010/
I have looked a bit more on that site and there were some more letters. I...
I had a look through and the protocol for the full study stated that for the ethical review:
"A favourable ethical opinion was given on 8 September
2010 (reference 10/H0206/32) by South West 2 Local Re-
search Ethics Committee. Two favourable opinions have
been provided on 31 May 2011 and 6...
I cant find any ethics documents for the full study apart from the forms that she fills in. I may have overlooked though so will check again tomorrow. There may have been another letter I suppose that is not posted on the site, but it looks like all of the documents there are the ones used for...
I was looking through some of the trial documents (http://www.bristol.ac.uk/ccah/research/childdevelopmentdisability/chronic-fatigue/smile/smile-documents/) and in the ethics review of trial approval letter it says:
Having had a quick look at his website it looks suspiciously like he is using...
the other problem with using teenagers might be that their bodies are going through so much change anyway, that self reporting on how tired they feel is going to be even less accurate. Therefore this would imply that there is even more of a need for proper scientific/biological results to...
I don't know if this is useful or if it's the right thread to post in as there are a few about Crawley. I think someone was asking about how she can say the things that she does in her presentations. I found this article which critiques an interview that she had and the information in it. It is...
The more papers you publish the more money your research organisation gets andthe more likely you are to get more grants. In each field there is a hierarchy of publications, so to publish in a top one your paper should theoretically be of better quality. At the other end I suspect there is less...
I think a PR consultant would have advised her not to lie in public as knowing that whatever she does is picked apart, anything she can't back up will get highlighted and will damage her brand. She has probably read some stuff on how to market yourself and may have been helped with presention...
or probably more sensibly could use the S4ME banner and have some authorised people that are allowed to use it to show they are part of a group that doesn't harass etc
Maybe we ought to come up with a symbol like a peace lily. Then if we send in any questions/FOIs, or ask questions at public meetings we can attach/hold said symbol to show we are part of a group that does not do personal harassment, but are only interested in getting answers to legitimate...
I heard the term years ago when a vet recommended a neutraceutical (for my pet). As I hadn't heard of it at the time I did some reading - I concluded it is a mix of minerals, vitamins, trace elements etc that are mixed together to treat a type of condition (rather than being a general...
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