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    Clinical and cost-effectiveness of the Lightning Process ... for paediatric chronic fatigue syndrome, 2018, Crawley et al (Smile Trial)

    There is a huge amount of detail on the Frown at SMILE site - they seem to have dissected everything that was available at that time. I can't process it mentally at the moment but if David Tuller is still looking at this then it might be worth passing the site link on so that he can see if there...
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    Clinical and cost-effectiveness of the Lightning Process ... for paediatric chronic fatigue syndrome, 2018, Crawley et al (Smile Trial)

    Someone did write a letter to the ethics committee about it back in 2010, it's quute long so I will just put the link here https://frownatsmile.wordpress.com/2010/10/10/letter-to-ethics-service-re-smile-october-2010/ I have looked a bit more on that site and there were some more letters. I...
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    Clinical and cost-effectiveness of the Lightning Process ... for paediatric chronic fatigue syndrome, 2018, Crawley et al (Smile Trial)

    I had a look through and the protocol for the full study stated that for the ethical review: "A favourable ethical opinion was given on 8 September 2010 (reference 10/H0206/32) by South West 2 Local Re- search Ethics Committee. Two favourable opinions have been provided on 31 May 2011 and 6...
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    Clinical and cost-effectiveness of the Lightning Process ... for paediatric chronic fatigue syndrome, 2018, Crawley et al (Smile Trial)

    I cant find any ethics documents for the full study apart from the forms that she fills in. I may have overlooked though so will check again tomorrow. There may have been another letter I suppose that is not posted on the site, but it looks like all of the documents there are the ones used for...
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    Clinical and cost-effectiveness of the Lightning Process ... for paediatric chronic fatigue syndrome, 2018, Crawley et al (Smile Trial)

    I was looking through some of the trial documents (http://www.bristol.ac.uk/ccah/research/childdevelopmentdisability/chronic-fatigue/smile/smile-documents/) and in the ethics review of trial approval letter it says: Having had a quick look at his website it looks suspiciously like he is using...
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    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    I don't have a tweeting presence - is there a Bristol Cable twitter thing you could post it to as well?
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    Spoon theory

    I thought spoons was because they were spoons of sugar and therefore energy
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    Tuller / Trial By Error: The Crawley Chronicles, Resumed

    the other problem with using teenagers might be that their bodies are going through so much change anyway, that self reporting on how tired they feel is going to be even less accurate. Therefore this would imply that there is even more of a need for proper scientific/biological results to...
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    Tuller / Trial By Error: My One-Sided Correspondence with Professor Crawley

    I don't know if this is useful or if it's the right thread to post in as there are a few about Crawley. I think someone was asking about how she can say the things that she does in her presentations. I found this article which critiques an interview that she had and the information in it. It is...
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    Slides & transcript from a talk by Malcolm Hooper, Off The Pace, given at the AONM Conference (19th November 2017)

    There is also a really good summary document in the dropbox folder as well
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    Trial By Error: The Crawley Chronicles, Continued

    He could ask for a public apology based on damage to his reputation and harrassment from EC supporters to him, defamation of character etc.
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    Researchers find oddity in other researcher's data...

    The more papers you publish the more money your research organisation gets andthe more likely you are to get more grants. In each field there is a hierarchy of publications, so to publish in a top one your paper should theoretically be of better quality. At the other end I suspect there is less...
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    Researchers find oddity in other researcher's data...

    great to see it is a wider issue and that more people are looking into the procedures and pitfalls of science paper publishing
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    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    I think a PR consultant would have advised her not to lie in public as knowing that whatever she does is picked apart, anything she can't back up will get highlighted and will damage her brand. She has probably read some stuff on how to market yourself and may have been helped with presention...
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    Tymes Trust - No reported harassment of staff at Bristol University

    Careful - you'll get labelled as aggressive!
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    Tymes Trust - No reported harassment of staff at Bristol University

    or actually a whole hirse would be great - a live one that poos a lot (which is most of them!)
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    Tymes Trust - No reported harassment of staff at Bristol University

    or probably more sensibly could use the S4ME banner and have some authorised people that are allowed to use it to show they are part of a group that doesn't harass etc
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    Tymes Trust - No reported harassment of staff at Bristol University

    Maybe we ought to come up with a symbol like a peace lily. Then if we send in any questions/FOIs, or ask questions at public meetings we can attach/hold said symbol to show we are part of a group that does not do personal harassment, but are only interested in getting answers to legitimate...
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    A Novel Nutriceutical Treatment of ME/CFS, 2017, Comhaire

    I heard the term years ago when a vet recommended a neutraceutical (for my pet). As I hadn't heard of it at the time I did some reading - I concluded it is a mix of minerals, vitamins, trace elements etc that are mixed together to treat a type of condition (rather than being a general...
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