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sorry the date must have confused me :)

coverage last month of the NIH changes https://www.nbcnews.com/nightly-news/video/what-doctors-want-you-to-know-about-chronic-fatigue-syndrome-397029955917 looked ok as a report until the end where Natalie Azar their "medical contributor" who is a rheumatologist said that treatments vary and...

News article from the Shropshire Star A nice story but my bolded bits stand out to me as refreshing change in how ME is reported! "The sculpture being created by The British Ironwork Centre in Oswestry, will be unveiled at The Shrewsbury and Telford Hospital NHS Trust’s charity Fun Day on...

March 31, 2018 The Lancet 391, 10126 (2018) Author: Robert H Saunders I was surprised to read that the GETSET trial by Lucy Clark and colleagues1 excluded participants who had physical contraindications to exercise, as such a criterion would appear to exclude anyone suffering from...

From Magical Medicine again: Initially, the Trial Investigators planned to use objective measures of physical ability at the conclusion of the Trial (the cost of the Actiwatch sensors was included in the funding application), but Peter White decided that any actigraphy measurements should not...

Yes sorry I meant ask them to join the forum as well. But I get that that would be a bit backwards!

ask what mechanism there is for reporting harms from non pharmaceutical etc treatments.

What about inviting William Weir or Malcolm Hooper if they do not already attend

a bit more: A search of PubMed for Professor White’s own declarations of interest just for the years 2004 to 2009 reveals that in many of the papers, he did not declare any competing interests at all, despite clear warnings from the journals that “Authors are responsible for recognising and...

yes there is loads of info out there and a lot of things were raised before but I think the boys network was too strong. Hopefully now with more support things will stick. I was going to copy the text from all of the resources that I could and put into one file if possible. That way they would...

See this doc http://www.investinme.org/Documents/Library/magical-medicine.pdf pg 257-262 which includes : Since it was believed that Professors White, Sharpe and Chalder all did have obvious and serious conflicts of interest and since any such conflicts had been denied by them, representations...

In the document Magical Medicine there is quite a good summary of the COIs from page 257 on http://www.investinme.org/Documents/Library/magical-medicine.pdf

This paper is also a good resource http://www.meactionuk.org.uk/Transparency_in_Government.htm

Here is a blog where it was also pointed out that a "curious coincidence is that Mansel Aylward sat on the PACE Trial steering group. " Lots of other good stuff in one place https://kittysjones.wordpress.com/tag/mansel-aylward/

He was Chair in Psychosocial and Disability Research at Cardiff, where he is also Director of the UNUMProvident Centre for Psychosocial and Disability Research I woukd have thought being in a UNUM position was a COI?

Maybe they called it trials in the heading as in the trials of the PACE trial. They have got it right through the rest of the document. I like the article as it hammers home a message and brings some of the other background into the story which frames it better for people ie that there is a...

Another article https://questioning-answers.blogspot.co.uk/2018/03/pace-trial-for-chronic-fatigue-syndrome-still-put-paces.html

There are also some really great resources here http://www.oneagleswings.me.uk/medicalarticles.html They look to be a good summary of information over the years

we probably would if we had the normal energy levels and brainpower of our well selves. But being hampered with cotton wool heads and string muscles is our downfall. That's why it's so amazing to have the power of super @dave30th to deliver messages intelligently for us.

Trying not to be overly dramatic but this is what it feels like to me. Whilst scientists in our community have said that their conversations with him have meant they believe he is looking at things in a different way that are better for us, if he is still saying the same old stuff in public then...