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  1. M

    Podcast: CBT for Chronic Fatigue Syndrome: Dr Lucy Maddox, Trudie Chalder

    I do remember flicking through it a couple of years ago and it being as dreadful as expected. I had bought it in the early days at huge discount in "Naff Books are Us " or similar, I probably still have it somewhere.. (Not saying that I am anti discount bookstores)
  2. M

    Podcast: CBT for Chronic Fatigue Syndrome: Dr Lucy Maddox, Trudie Chalder

    This is because it features on the "Reading Books well on Prescription" list: https://napc.co.uk/wp-content/uploads/2017/09/Reading-well.pdf P14 Appendix 1 under Chronic Fatigue, alongside a Sharpie et al special!
  3. M

    Left out (Norwegian documentary on ME)

    This is great to share with interested frinds and family
  4. M

    Nuffield Department of Population Health Host Fake News Event

    Thanks for this @spangle and welcome to the Forum. Interesting at about 46 mins that the speaker comments that the Andrew Wakefield paper was withdrawn due to fraud in the research, rather than just scientific uncertainty. I agree that the academic at 49 mins speaks very well re the...
  5. M

    Cortisol levels in Chronic Fatigue Syndrome and atypical depression measured using hair and saliva specimens, 2020, Cleare/Chalder/others

    Presumably, getting it printed in the Journal of Affective Disorders aligns with the King's College view that CFS is a mood disorder.... "blogs.plos.org Affective disorders are a set of psychiatric disorders, also called mood disorders. The main types of affective disorders are depression...
  6. M

    Seat for cooking

    I use an old office chair for dishwasher loading/emptying and if I need to stir things on hob. Also when putting away online food order. My kitchen is open plan with dining room. All my veg chopping etc is done in their. Appreciate that this would be too bulky for many kitchens andprobably too...
  7. M

    O'Dowd-Crawley early intervention study

    Surely they would assume that this small band of militant activists who do nasty things like FOI requests and say mean things to/about psychiatrists would be in close communication though.
  8. M

    Pathogens associated with triggering ME/CFS - discussion thread

    My daughter developed ME after viral labyrinthitis. The specific symptoms of dizziness/nausea etc went after 4-6 weeks, but she never recovered from the post-viral fatigue! Interestingly, @Forbin, about a year later she was tested for ASO (Anti Streptolysin O - a measure of ongoing strep...
  9. M

    Blogpost by Super Pooped (Hannah Radenkova): What no one tells you about being Housebound

    or the monthly salary and the respect of doing a good (paid) job etc
  10. M

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    My daughters limits have not widened. I wonder if this can occur when people who have been trying told to "push through" by themselves/friends/physios or whoever, are given permission to slow down, rest and NOT overdo it. Then, they MAY gradually improve a bit and do more. Could this be why...
  11. M

    BABCP Spring Workshops and Conference KCL 16th to 17th April, 2020

    I don't know about 'old wine in new bottles'; I think it's been pretty well corked. To me it has definitely turned to vinegar.
  12. M

    A Trial of ME - Elizabeth's Story. #MEAction article, November 2019

    This trial and it's subsequent expanded write-up as a "Health Technology Assessment" seems to be a very significant lead up to PACE. I'm assuming that the "technology" used is the psych stuff of CBT and GET.
  13. M

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    It is also Psych speak for those with depression, low motivation...
  14. M

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    The MEAction survey shows results for the individual clinics. The Bristol Service for adults had one of the largest responses (alongside Sheffield)...
  15. M

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Pete Gladwell was the physio involved in the dreadful pre PACE Hazel O'Dowd trial https://www.s4me.info/threads/a-trial-of-me-elizabeths-story-meaction-article-november-2019.12494/#post-220439 https://www.ncbi.nlm.nih.gov/pubmed/17014748 ETA Pete, not Philip
  16. M

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    I totally agree @Denise. When a youngster cannot remember how to do the A-level Maths that she had known inside out a couple of months earlier and her tutor says "If I was meeting her now I would recommend doing BTechs not A-level Maths", there is clearly something seriously wrong. However I...
  17. M

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    It sounds about as dreadful as I feared .... Yet they wonder why people are wary of them as a charity. I do wish they would stop the "boom and bust" mantra. I don't know anyone with ME who can "boom"
  18. M

    Dr Myhill’s complaint to GMC about PACE authors.

    As I understand it, she is hoping that the GMC will investigate the PACE authors, re their flawed research. Sadly the number of MPs supporting her actions has reduced significantly since the election.
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