Search results

I have forwarded your request to someone who has worked a bit with 25% group, but not heard back.

Has some good content, including Dr Nina Muirhead

How do we get the CBm (Cognitive Behavioral myth) of ME off the table? This seems the biggest problem in the UK atm. It is at the centre of: NIHR spending All medical education, for doctors, therapists/nurses etc Media trivialisation of the disease ME being categorised as a mental health...

Where are the actometers or other objective measures of activity? ETA: oh, they did include one measurable activity: 5 sit to stand manoeuvres, started from a seated position in a chair! "The speed of completion is used as a measure of physical strength"

I think one year Stephen Holgate was trying to arrange it in Southampton, but there was a problem. It would be great if it could be held near to some cheaper hotels!

SO, as we know there is a serious error and it should be withdrawn! I have been checking thro some of the 2,000 messages sent to ME Action, in response to NICE confirming that there will be no note/warning/other action taken re the current GDL, before the new ones are published in Dec. There...

Sorry you are feeling so sick Mango

Interesting: "Discuss risks before beginning treatment or providing care 6 Patients must be fully informed4 about their care. When discussing care options with patients, you must discuss the risks as well as the benefits of the options. 7 You or an appropriate person6 must give the patient...

@dave30th have you seen this- especially EC's involvement?

For the non-Scottish among us: skelf /skɛlf/ noun SCOTTISH 1. a splinter or sliver of wood. 2. INFORMAL a troublesome or annoying person.

Last day for signing, adding a message for NICE.

Love this phrase

At least they realise they need an objective measure for activity: "Nearly all previous studies have used self-report measures of activity, which are prone to bias, provide unreliable estimates, and do not sufficiently account for sedentary behaviour or light activity, which comprise most of...

1973 signatures many with messages received. Last chance to add yours tomorrow - 14 Feb

Great article and comments. the situation is so similar to UK, and just as dreadful!

I have messaged a contact from MEAction Scotland. Will report back if I hear anything. (I believe EMsho is on a few months break) ETA Cross posted with Amw66 above

Clare McDermott has herself recovered from CFS/ME.She developed it after encephalitis aged 12 and was seriously ill for over 15 years. "I was very lucky in having help over a number of years to make a recovery journey, which despite many ups and downs, has finally led to me being well again."

Hi @Hutan, great work. My only comment on initial read thro was that PEM is often stated as starting within 12 - 48 hours, rather than 24. My daughter can feel dreadful in the morning after an active few hours the afternoon/evening before. Only a minor point and may not be representative...

InvestinME Research Retweeted Quadram Institute @TheQuadram Simon Carding from @CardingLab kicks off our event with @Invest_in_ME on our ME research @NorwichResearch Park & the #RestoreME study #Restore-ME @Invest_in_ME have a few tweets, mainly introducing the different people who will be...

Thanks Adam, another excelllent video.