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It's garbled but if it means what I think it means, that's interesting. If patients have a higher pain tolerance, it suggests they're not hypersensitive to pain.

That sounds like diabetes.

Yes. But I overheat and get dehydrated too.

I have mini periods of remission several times a month. Usually first thing in the morning after a good night's sleep. I wake up energised and alive, and as if a great physical weight has been lifted from my bones. Sometimes it lasts to the afternoon. Very rarely it lasts a few days. But it...

Interestingly, some UK clinics give the same stats for ME patients. This is based on clinical anecdote only, however.

There's also fisherman's pie, which has fish in a cheesy sauce with peas and other veg, again topped by mashed potato. We're a creative bunch, culinary-wise, we Brits.

Also the ratio. If you have more comments than likes, that's usually see as a bad thing.

I would reframe the question slightly: does an ME diagnosis help you or not, at this point? Unlike pSS, ME doesn't have any treatment that shows efficacy. Will you get treatment options with an ME diagnosis that you can't access with pSS? Or will a pSS diagnosis mean you'll be told to do more...

Yeah, it looks like what most people call porridge is the same as oatmeal, so long as made with oats: https://www.google.com/amp/s/www.mnn.com/food/recipes/blogs/amp/whats-difference-between-oatmeal-and-porridge. Porridge can sometimes be made with things other than oats, in which case it isn't...

Maybe someone needs to make a response to the paper citing Michiel's blog, so that the two are more clearly linked? It's helpful to have everything in one place.

I think metabolic syndrome happens somewhat more often than usual with us. Raised blood sugar, raised cholesterol, central obesity (apple shape in the middle). Exercise is probably involved, but also, as mentioned above, poor eating due to low energy. I think I was heading this way. It might be...

From Wikipedia: Inosine pranobex = Imunovir. This and the supplement inosine have have both been used anecdotally by patients and clinicians. (This isn't a recommendation, by the way.) If this adds up, it could be interesting and might suggest treatments. Of course, it's a tiny sample, so we...

The symptoms do appear to have a lot of overlap. GWI seems to have some kind of PEM, for example, but it seems to be different to our PEM somehow. I read something once about the different phenotypes of GWI being due to injury in different parts of the brain (e.g., brain stem alone, brain stem...

They may have different brain chemistry: https://www.sciencedaily.com/releases/2017/11/171110084312.htm

I think the idea, re: boom and bust, is that you're always supposed to boom. If you feel ill, you don't stop.

Thanks. I've noted this.

I thought Alvin's comment was more aimed at the defenders in the articles, and society in general. But I could be wrong. As an analogy, it seems like people in the past tended to disbelieve their idols could do terrible things just because they liked their music/films/TV shows/politics. But I...

Absolutely. In my experience, abusers get away with it because they're superficially charming. That's why people find it hard to come forward. The victims worry no one will believe them because the abuser is so popular.

I think Willie was misunderstanding something. We've only been setting protocols. We haven't discussed treatments yet, only the protocol we'll use to look at the evidence for treatments.

It's mostly just one ear, but I think I get it in both ears from time to time.