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Re: OMF. There's talent and experience in the Stanford team and their collaborators and I'm expecting that useful science will come from them, which may or may not be answers we all want to hear. I understand the desire to work without being slowed down by publishing, which really seems to come...

That's what I feel, and also about anyone else who does the same. There people who are feeling or have felt suicidal because they can't see an end to what they are going through. To have researchers and the media coming out with hype that raises false hopes isn't helping. I know it's not always...

As she keeps persisting in.. well.. anything at all really, I propose EC conducts life with a bag on her head. The more anonymous she is the better :bag: edit changed 'her research' to 'life'. (can't remember how to cross words out)

:hug: I'm at a loss for suggestions that are better than the evil mastermind plan, but wonder about this That's what I do too! so now I've got pillows and blankets that make my couch comfy to sleep on. That way I might get more sleep on the couch. Sometimes I do. Might help? It's pants, I hope...

The profile of ME in parliament has clearly gone up given the frequency of questions we are now seeing.

@strategist I hope you are right. Possibly encouraging.

Shhhh!! - I'm still trying to be optimistic! They've a track record of doing that so I wouldn't be surprised by it. The Select Committee are certainly aware of the problem of dishonest reporting by assessors, so maybe that will make a difference. I certainly don't expect the government to put...

Atos being taken to court and losing repeatedly might force a change from the government, particularly if this was publiciesd. I try to be optimistic.

I agree.

I would say Alem, but thinking strategically I would say Jen. She is more visible right now than anyone else and can capitalise on it for all of us. More likely to gain votes if we are serious about this. Strategy. There's no doubt Alem deserves an award. @Graham has been in contact with his...

Bumping because this offer ends tomorrow

Excellent, thanks to @Andy and any others involved in setting this up Big thank you to the Biobank Team

So far I think the select committee are doing ok (I've been following some of this on parliament tv) but of course it remains to be seen what if any good comes of their work. Should be in every newspaper, with factual detail.

They don't want to know. Or admit they know. But now they know we know.

if being visited at home- 13. "I've brought my kitchen timer, how long do you want me to set it for? I'll put the kettle on."

I hope for all our sakes that cheap blood testing is achievable. I'm sure they're working hard on it.

Good question! @Keela Too and @Trish are right. Staying safely within the energy envelope is important for our ongoing health. I wish I had known this a lot earlier in my illness. I have found Keela Too's blog very helpful. You could consider stretching exercises or something like yoga. These...

I had a look on PR and there didn't seem to be a thread on the biobank christmas fundraiser appeal so I made one.

I agree, @Kalliope , this is really good. I hope it's publication in the Journal of the Norwegian Psychology Association helps other children with ME in the future

Thanks Andy I was really surprised to see it listed! I'm not sure I believe it, but every time I look (signed out) it's there :laugh: It'd be great if the offer was available elsewhere too.