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Oh no I've just downloaded Panda Pop :emoji_fearful:

Fair play, SW has put his take on the article as it pertains to himself out there. Moving on..

Sleep when you need to @Squeezy and maybe you can come out the other side with some improvement. We're with you in this :hug:

@ladycatlover Only you can say whether heart rate monitoring is for you while you are bedridden but you might find it useful to have a HR monitor to record your heart rate now. As you improve (which I very much hope you do and soon :hug:) tracking that on a monitor might be useful. Just a...

It's kicking sick children when they're down. My daughter's school are generally ok now but it took a while, and some teachers are just stubbornly stupid about it.

@large donner thanks for elaborating I was wondering what you getting at

How's a person with ME to read that lot I wonder? A page a day for a year? Thanks for posting though I don't think there will ever be an end to funding for bps model research this side of the end of the world/civilisation as we know it. What I'm hoping for is a complete reversal of of the...

@Allele - that looks great - I've looked at similar on Youtube but haven't seen one that's so simple to attach and re-attach. It looks as though it might fit a wide range of self-propelled wheelchairs. Was there any information about it?

@Paradoxfloss You're having such a horrible time, I feel for you. I hope you see some improvement soon and that your care application succeeds in giving you the help you need. Some people in the caring professions can be so unkind :hug:

@Nathalie Wright I'd just like to add that your article is just what I need to pass on to other people. It's the most comprehensive, detailed but very readable, referenced article in a sensible newspaper that I've seen; that people (non sciencey healthies outside my family) might take on...

Exceptional article - well done and thank you @Nathalie Wright!

I would like to see the harm they do highlighted.

I broadly agree with @Jonathan Edwards. I understand the feeling of needing to do something about EC, but she's done herself no favours. The SMILE trial is a gift. This thread went off at a tangent. Jen's tweets are great - she's a smart woman.

She is a danger to children, and the current case is deeply worrying. I still think EC is best countered by adressing her 'science' on which she basis her treatment in her clinic. Parents, understandably, are afraid to come forward publicly against her while their child is still vulnerable.

I think we are best served by concentrating on her science first. Disseminating truth about clear provable factual errors and lies such as the mocked up Sunday Times email comes second. She absolutely doesn't speak for me, but I'm not really interested in an open letter or petition to say...

Well done @Cemoi! I hope it wasn't too costly healthwise. Welcome to the forums :)

Behind every great old cave man sharing his wisdom is an old cave woman rolling her eyes.. :rolleyes:

I think a doctor, if wrongly dismissive for whatever reason, might be more likely to take a patient seriously if there is a second person of any gender supporting what the patient says. I can cite examples from my family where a woman accompanying the patient has made a vital difference (i.e...

;)

And that no one will listen to the criticism anyway