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  1. Skycloud

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    I find it helps to remember that the RCGP is also something like a trade union for GPs and looks after GPs' interests. These don't always coincide with the interests of patients. Edit to add - Shortages of GPs and the long hours many work and issues around funding mean that the RCGP would say...
  2. Skycloud

    David Tuller: Trial By Error: My Six-Month Review

    If it helps I trust your judgement.
  3. Skycloud

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Thank you @Jonathan Edwards. More or less what I've just been trying to write, which I've now scrapped. but I didn't know about the chairman, but it generally it looks that way to me.
  4. Skycloud

    David Tuller: Trial By Error: My Six-Month Review

    Thank you David. I can see that you are going to have to prioritise what you do between now and June and that may not be easy! There's a book in all this somewhere..
  5. Skycloud

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I think sometimes we're inclined to see conspiracy against us when that's not (all?) that's going on. There are other likely reasons why recruitment would be piecemeal.
  6. Skycloud

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    I also support your letter @Trish, thank you for sending it
  7. Skycloud

    Forward-ME Group Minutes – 21st November 2018

    Thanks @Andy. I remember Sam Bromiley now.
  8. Skycloud

    Forward-ME Group Minutes – 21st November 2018

    Anyone know who Suzie Henson-Amphlett and Sam Bromiley are?
  9. Skycloud

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    I'm probably wishing for the moon but I still think that a different group made up of independant clinicians/scientists and patients should and could submit a better, upto date, review. eta punctuation
  10. Skycloud

    ME Association Website Survey: What are the most important things a GP needs to know about M.E.? | 08 January 2019

    The three things I voted for are the three most popular choices so far, though the number of votes cast is low at this stage. I hope that email/telephone consultations and home visits for the severely affected remains high on the list at the end of the vote.
  11. Skycloud

    Feeling stressed? Join a choir, says top psychiatrist. (Dec 31 2018) Davis, Classic fM

    Perhaps Wessely is trying to make a reasonable point that for stressed out students taking part in enjoyable and sociable activity could be a good way of alleviating stress. I think this is old advice, isn't it? The danger is when this is taken to mean, or purposely stretched to mean, that...
  12. Skycloud

    BMJ - Pledges for the new year (open science and involvement of patients)

    But they don't want to know if 'patients and other relevant communities' notice problems with what they publish. edit to fix predictive text
  13. Skycloud

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    I've been wondering for some time - presuming reduced deformability of RBCs and this way of measuring them pans out as a biomarker, and it's useful for diagnosis, could, for example, being a sickle cell carrier (ie asymptomatic for sickle cell but with a low percentage of deformed RBC's) affect...
  14. Skycloud

    ‘It’s the unknown’ – understanding anxiety: from the perspective of people with multiple sclerosis (2018) Chalder et al

    I can vouch for 2 kinds of anxiety from personal experience. The kind that 'just happened' and took over my body was very strange to experience and I have had 2 episodes of it. There was no environmental, experiential or physiological reason for it that I could fathom; I was ill, but nothing had...
  15. Skycloud

    Ecclesiastical Insurance: 12 Days of giving

    Also Tymes Trust, charity no. 1080985
  16. Skycloud

    Action for M.E.'s AGM and Conference 2018

    @Sly Saint Ok I see. I couldn't remember that bit well enough and didn't want to watch it again to check.
  17. Skycloud

    Using Heart rate monitoring to help with pacing.

    I'll have a look, thanks @adambeyoncelowe
  18. Skycloud

    Action for M.E.'s AGM and Conference 2018

    Did she say Medically Unexplained Symptoms, or did she say medically unexplained symptoms? Maybe the problem is that some biopsychosocialists have misappropriated the english language.
  19. Skycloud

    Using Heart rate monitoring to help with pacing.

    3 fitbits in 3 years sounds annoying too and I hope the third lasts well for you, Trish. I also hope that as with many things the technology becomes cheaper as time passes.
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