Search results

The idea that turmeric is the reason for India's lower rate of dementia & Alzheimer's (AD) is too simplistic. While it may turn out to be a contributing factor there are bound to be a multitude of reasons. For example.... "The frequency of the APOE4 allele, a well recognized risk factor for AD...

It's standard for them to also scan the cervical spine when doing the brain because a disease such as MS can cause lesions in the cervical spine so they want to make sure to rule such things out. They did the same when I had my initial brain MRI done.

Neurologists are known for generally having bad bedside manner. It seems to go along with the specialty. I have a neurologist who I like (he is older & toward end of his career) and he previously diagnosed me with FND. However he never tried to tell me it was psychosomatic or that I needed...

The "2 shocks" refers to the shocks that must be done during the surgery when the device is implanted and again after surgery before you are released from the hospital. "During the procedure Once the ICD is in place, your doctor will test it and program it for your heart rhythm problem. Testing...

Wall Street Journal: The Unfulfilled Promise of DNA Testing The article weaves the story of a young sick girl thru it by discussing how genetic testing has resulted in her diagnosis changing over and over and over as the science changes constantly. And how this is happening to other patients...

Open Medicine Clinic tested my NK Cell Function and it came back as very low. It was used as evidence that I had ME/CFS. Turns out I did not have ME/CFS and actually have autoimmune disease (without any positive AI blood markers).

'Skeptic Doc' Harriet A. Hall MD has just published a new blog post about the use of Rituximab for ME/CFS. https://www.skepdoc.info/chronic-fatigue-syndrome-and-rituximab/

If I can remember I will write respected Endo specialist (now retired) & researcher Dr. David Redwine and ask his opinion on the matter. See what his 2 cents are :)

@JonathanEdwards It's my understanding that Endometriosis is thought to affect roughly 1 in 10 women. This figure is the widely cited by various Endo orgs, medical literature, etc.

I think my illness "Relapsing Polychodritis" is a good example to use in this "disease" vs "syndrome" debate. Relapsing Polychonditis (RP) has no known biomarker, and is currently thought to be a syndrome that is autoimmune in nature. The etiology of RP is unknown. Even with all these unknowns...

Gallbladder attacks (from stones) should be high on the list. I have been thru all sorts of incredibly painful things and still the worst pain I've ever experienced was during gallbladder attacks.

@Daisybell Feel free to private message me if you wanna discuss it further.

Not sure how much your know about my story, but I was misdiagnosed with ME/CFS a few years ago by a doctor at Open Medicine Clinic. They ran a ton of blood tests on me and some of the tests run were complement tests. My complement C3 came back very low (only 30% of normal). After a little...

@Jonathan Edwards This is a little off-topic but I have been trying to figure out something my neurologist said to me at my last appointment. For some years now I have been experiencing pain and muscle weakness in my left leg (theweakness becomes very apparent on inclines & stairs) and after...

"A new book, The Magic Feather Effect: The Science of Alternative Medicine and the Surprising Power of Belief, by the journalist Melanie Warner, sees Dumbo’s feather as an analogy for alternative medicine. The analogy is imperfect, but the idea is that alternative medicine providers persuade...

There is an new book out called 'Cognitive Errors and Diagnostic Mistakes: A Case-Based Guide to Critical Thinking in Medicine' (by Jonathan Howard). The book is 588 pages long so I doubt I'll be reading it in this lifetime. However 'Skep Doc' Harriet Hall MD posted a blog post about the book...

The ME/CFS doctor who misdiagnosed me with Lyme is an MD with a good reputation in the ME/CFS community, not at all on the fringes. I do not think her intentions are bad or that she is meaning to mislead people re: Lyme but rather has herself fallen for the shaky alternative Lyme narrative that...

"The internet encourages patients to ask physicians for serology testing for Lyme disease and to demand further antibiotic treatment." And then when your results come back negative the internet tells you that you probably still have Lyme and to not trust the testing and to get an alternative...

An opinion piece in the New England Journal of Medicine complains about the limitations of evidence-based medicine (EBM) and recommends a new approach they call “interpersonal medicine.” In my opinion, good clinical medicine is already interpersonal medicine; there is no need for something new...

Perhaps this will prove to be helpful to the following growing number of patients (from a new article in the New Yorker).... In one of the most fascinating sections of “Tell Your Children,” he sits down with Erik Messamore, a psychiatrist who specializes in neuropharmacology and in the...