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There also is now a Go fund me page for those interested in helping: https://www.gofundme.com/f/gofundmecfs-support-scientific-research-mecfs

Phase one determines whether a drug is safe to check for efficacy. 70% of drugs pass this step where only 25-30% pass a phase three. So phase one was a success in that they didn't kill anybody!

Just wanted to bump this up to link Dr. Bhupesh Prusty's presentation he gave at the NIH Conference earlier this year.

http://naviauxlab.ucsd.edu/wp-content/uploads/2019/12/Naviaux-Lab-Newsletter-Winter-2019_v10_sm.pdf P.5 "Other exciting studies include a new collaboration with the brilliant virologist, Dr. Bhupesh Prusty at the University of Würzburg, Germany. Using a new, cell-based assay system, we are hot...

Apparently the video has been pulled. I hope all were able to watch it.

https://www.nih.gov/news-events/news-releases/study-finds-differences-energy-use-immune-cells-me/cfs New findings published in the Journal of Clinical Investigation suggest that specific immune T cells from people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) show disruptions...

Thanks Andy and Dr. Morten for taking the time to do this interview! Much appreciated.

Hi @Webdog , You should follow up by email and ask again. I had to ask a couple times before receiving mine. Thanks for taking part in this trial as it wasn't easy.

https://neuroimmune.cornell.edu/news/ Help us raise $50,000 for research on Immune Dysfunction in ME/CFS. A generous donor will provide up to $25,000 for donations received by the Cornell Center for Enervating Neuroimmune Disease. Please make donations at https://neuroimmune.cornell.edu/donate/

Hi @wigglethemouse ' It took me over a week to recover. I did receive a report from the Cardiologist which I posted part of below. Cardiopulmonary Exercise Testing Exercise performed: 10 watt Ramp protocol on upright ergo cycle Exercise time: 12 minutes, 26 seconds...

The patients were picked by Dr. Kogelnik. I don't think Dr. Kogelnik is involved in the study anymore though.

Maybe the CDC should send someone to actually learn about this disease so we don't have to have anyone sing to us again!

He had three research papers due out. I've been seeing Dr. Montoya the last seven years. This is a big loss.

Comment from Cort in one of his recent blogs on the updated thinking on the metabolic trap: https://www.healthrising.org/blog/2019/05/07/threading-the-needle-nanoneedle-scores-big-in-first-me-cfs-test/

Email Received from Ubiome this morning: On Friday, April 26, 2019, federal authorities, pursuant to a search warrant, searched uBiome’s facilities in San Francisco. We are cooperating fully with federal authorities on this matter. Our Board of Directors has appointed John Rakow, our...

I was in the "crash" mode on the second stool sample. I can't give an accurate assessment of percentage. I definitely have gotten worse over the course of the following couple of days. Yes, they took blood before the exercise challenge and 24 hours after. Also I had to deliver saliva samples...

I just finished up doing this study a few days ago and am still crashed and have been in bed most of the last few days. It will be all worth it if this helps get us closer to understanding and a cure. The staff at Stanford is very helpful and friendly in making it the least intrusive as possible.

Yes, they seem genuine. If there data is good they then have to climb that mountain of trying to raise the millions it takes to bring a new drug to market. Even if they raise the money we won't see this drug for years. Were better off if we can find an existing drug and re-purpose it.

It's possible that exosome cargoes will be found to be biomarkers for ME/CFS, but we don't know the answer about that yet. I've attached a paper that showed differences between RNA content of vesicles in healthy people vs. Alzheimer's patients, to show the potential usefulness.

For those that want a basic understanding of Exosomes and there potential for biomarkers and treatment. Here are some short videos that might be of interest. https://www.thermofisher.com/us/en/home/life-science/cell-analysis/exosomes/exosomes-documentary-episode-1.html Titles of some of the...