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One for @Tom Kindlon

I'll tweet nurses in N Ireland.

Done

I've had OI since day 2 of ME ,so " time upright" for activity is a crucial part of pacing for me.

Good letter. I wonder if it's worth adding after your first mention of ME that it has its own, SNOMED,WHO and CDC codes. Should you add the reference for your paper?

Does anyone ever write to the corresponding author to point out how a study could be improved?

Is Andrew Gwynne anyone's MP?

There's a cardiopulmonary doctor in London who's an expert in exercise physiology. I've tweeted him some stuff and he retweeted Mark Guthridge thread on exercise physiology. He's aware ME could be a consequence of LongCovid.

Someone asked Tim Spector( KCL) on the Covid19 Symptoms App, if they could have been reinfected after 1 month free? of symptoms. I wondered if it's more likely to be PVFS because their activity level has increased. Twitter replies can be too vague☹️

I've sent you a private message via conversations. Thanks

Chalder is moving onto Acceptance and commitment therapy ☹️ There's a huge amount of frustration among MH patients at the idiotic comments therapists say. Quote from psychotherapist on Twitter. "When it comes to psychotherapy treatments, absence of evidence is not necessarily evidence of...

I'm not thinking of anything specific. More a case of having longitudinal samples stored to compare those who recover early with those who don't.

Several LongCovid on Twitter are saying that symptoms resolved completely between 100 and 120 days post infection. I expect any research studies won't have blood samples to cover these crucial early weeks.?

Pity Whittaker equates the fatigue with emotion ☹️ I remember feeling very weepy in months 3 and 4 after onset and then it stopped, while the other symptoms continued. I've always been the calm one in a crisis so it was a very weird experience.

This was posted by the Dutch. Anyone with persistent respiratory symptoms after 8 weeks is supposed to have a chest X-ray. I've had persistent SOB and chest tightness since 1st April, so had chest X-ray and spirometry last week. All normal , symptoms are now starting to ease.

It may be to use in their social media campaign to raise funds.

Fauci said the symptoms resemble those seen in patients with myalgic encephalomyelitis, or ME, once known as chronic fatigue syndrome So Fauci is consigning CFS to the history books?

I've sent Jonathan Edwards Scottish Government inquiry and the first part of David Tuller PACE blog to a few LongCovid doctors. I've made it clear I don't know what LongCovid is but to beware of the BPS model. Reply " This is so true "

https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/415378 Long-term follow-up of Sars1. 27% met 1994 CDC criteria for CFS after 4 years.

I've been in touch. She says Thanks.