Search results

Months ago I wrote to Dr Nisreen Alwanan with some information and told her that Prof Stephen Holgate ( also based at Southampton) is chair of CMRC. Anecdotes on Twitter that some LongCovid who have made progress ,are relapsing with autumn viruses. Sounds familiar. I know that ME doctors...

More about viral myocarditis. Cardiologists say that it wouldn't correlate with LongCovid, and that mild viral myocarditis with other viruses is probably much more common than we realise. Prof Beverly Hunt has said something similar about embolism. They need to look at incidence in other viral...

Surely this is OI that they are describing? i.e " needing to lie down"

I wholeheartedly agree with @Hutan about this. Episodes of "controlled PEM" in my experience never caused deterioration.

Wrt JAMA paper on cardiac MRI In many cases, myocarditis improves on its own or with treatment, leading to a complete recovery. Myocarditis treatment focuses on the cause and the symptoms, such as heart failure. In mild cases, persons should avoid competitive sports for at least three to six...

@PhysiosforME "As Lynne Turner-Stokes, consultant in rehabilitation medicine, warned in a recent Royal Society of Medicine webinar,3 “Before we get people exercising, it’s important to be sure that it’s going to be safe." I think she needs one of your letters.

https://www.bmj.com/content/370/bmj.m3565 It's basically a manifesto for care and research.

Does anyone have a copy of the journal that David Marks editted a couple of years ago to send to Garner?

I've had contact with Brendan. He aware of the background to the mess. It's up to him now.

#MESpine is now being used on Twitter.☹️

https://www.s4me.info/threads/cerebral-blood-flow-is-reduced-in-me-cfs-during-head-up-tilt-testing-even-in-the-absence-of-hypotension-or-tachycardia-van-campen-et-al-2020.13583/ In this paper the majority of PWME had normal HR/ BP. I think Barnden found that autonomic centres in brainstem...

I'll let her know. Thanks

@Snow Leopard would you consider sending your critique to the authors? People on this forum write excellent critiques and it seems a shame not to use them

https://karajanesings.com/2020/08/13/help-me-reach-chart/amp/?__twitter_impression=true She's asking for a final push to reach Official UK chart.

https://www.bmj.com/content/370/bmj.m3026

https://www.bmj.com/careers/job/103834/consultant-physician/ It's taken over 9 years and a lot of setbacks but we're getting there. CONSULTANT PHYSICIAN WITH INTEREST IN MYALGIC ENCEPHALOMYELITIS AND CHRONIC FATIGUE SYNDROME (ME/ CFS) This is a regional part time post of 5 PAs (20 hpw)...

Does anyone know Prof Trisha Greenhalgh position on ME? She's based in Oxford.......

ESRD causes metabolomic changes so are the cardiorespiratory changes compensatory? I've no idea!

@Sid My experience as well.

https://academic.oup.com/qjmed/article/103/8/589/1524268 This paper has 4 different scales, which are more time consuming to complete. Is it worth tweeting it? It's definitely a rush job @Snow Leopard