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  1. obeat

    Northern Ireland: News from Hope 4 ME & Fibro

    Here's the link to the series of webinars from September 2021 https://view.pagetiger.com/me-fibro-webinars/1 I think that this one will be recorded as well. I can check with the nurse in our charity. There is more information about the series of webinars from September 2021 in the eventbrite...
  2. obeat

    Northern Ireland: News from Hope 4 ME & Fibro

    For may 12th there is a conference on the NICE guidelines with input from the medical directors of both universities. https://www.eventbrite.co.uk/e/delivering-together-new-nice-guidelines-for-mecfs-tickets-522183343437
  3. obeat

    Northern Ireland: News from Hope 4 ME & Fibro

    Caroline Kingdon has been asked to give another webinar on severe ME at the clinical education centre for nurses and allied healthcare professionals in Northern Ireland in February.
  4. obeat

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    @dave30th as a fellow of DWME can you raise this point with them as well as the fact that Jonathan Edwards testimony is universal, not just appropriate for ME research.
  5. obeat

    Dr Karl Morten - UK researcher based at Oxford University

    Or ME Research UK. They would need £60,000 per annum to cover all costs
  6. obeat

    Neutrophil issues

    Another neutrophil study from Dundee.
  7. obeat

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    From the website Your health, measured. Visible Plus uses heart rate, accelerometer and gyroscope data from the Polar Verity Sense™ to gain illness-specific insights. Measure orthostatic intolerance, time spent upright and more.
  8. obeat

    Can we get large-scale observational data on PwME's Covid outcomes to get us on priority list for treatments and vaccine boosters?

    Does DWME have any member with an epidemiological background who could organise a quality online survey?
  9. obeat

    Northern Ireland: News from Hope 4 ME & Fibro

    Merged thread The VR film was made by Hope4Mefibro working with Deepa Singh from the university of Ulster and has already won two awards. It was launched at the Northern Ireland NHS confederation meeting and the charity made a lot of good contacts.
  10. obeat

    Closed UK: DecodeME updates, was recruitment thread.

    Decode ME posters will be on display tomorrow at the Northern Ireland NHS confederation. About 600 NHS delegates attend. Hope4ME has an information table.
  11. obeat

    General Anesthetic and Severe M.E

    I had two anaesthetics last year, and I don't think that they caused any side effects. The problems in hospital are noise ,bright lights and excess activity so you need to plan for those. I wore my eye mask and earplugs while being anaesthetised and the eye mask had been replaced when I got back...
  12. obeat

    Long-term cardiac pathology in individuals with mild initial COVID-19 illness, 2022, Puntmann et al

    Is this a description of viral myocarditis, which can cause a range of symptoms from asymptomatic to heart failure.? Numerous viruses cause viral myocarditis but it is never been investigated in mild patients. One study of RSV showed that 50% of the children at asymptomatic MRI changes.
  13. obeat

    The Physiological Society: Online conference: Long COVID: Mechanisms, Risk Factors, and Recovery, Feb 22nd - 23rd

    Email from Dr Catherine Hall. Dear Dr Beatty, Thanks for your email. Our final programme is nearly complete but I will see if we have any space for a post-exertional perspective, which would definitely be interesting. We will also consider submitted abstracts for oral presentations so...
  14. obeat

    Let's talk wheelchairs and mobility scooters

    Which company do you recommend for reliable replacement batteries?
  15. obeat

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    So how do we reach doctors, (to develop a long-term interest), beyond these specialists , given how the Royal cronies have demonised us again?
  16. obeat

    News from Doctors with ME

    https://doctorswith.me/myalgic-encephalomyelitis-how-the-paradigm-has-shifted/ This is the webinar series from N Ireland.
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