Search results

Private Eye magazine is seeking nominations for investigative journalism. Think David Tuller is well worth nominating for this. Sadly just spotted & deadline is 2nd April & have little time to prepare. Award is worth £5,000 and would bring judges eyes to bear on the issues. Wonder if...

It’s called ‘owning the room’. They are experts & deploy all the armoury in their professional skill set. I would love to see them questioned forensically by a Parliamentary Committee or by a QC in court, under oath.

I do think their media strategy while successful is misplaced: because of the underlying flaws with their ‘message’ ie poor underlying research. Each time they intervene like this, they generate more attention by their behaviour & people dig into the background & hey presto. Tbh thought it has...

Perhaps would be good for S4ME to put out this kind of statement: idea originated & drafted here.

That came from out of my head. Can’t say it’s never been said before in human history, but seemed pithy and apt.

I think that joining, resourcing & suporting charities & volunteers is the step that we need to take. There is no shortage of good ideas & strategies: the issue is resourcing & seeing them through. Having a great idea or strategy is one thing. In lots of volunteer context the right next...

Fortunately was placed literally at the fag-end of the show. Previously eg for SMILE Trial, put it in a prime time slot between 8 and 8.30am (from memory).

He was the Editor for the day and tried to shoehorn the piece into a day themed around scientific rationalism and liberal humanism, so ‘framing’ the story as criticism of MEcfs research as irrational & anti-science.

Time to call in Special Agent Dale Cooper for some darn fine cherry pie https://giphy.com/gifs/trippy-twin-peaks-smoke-PVLb0qOwbe0y4 Edited to try and get the gif to appear ....

Time to share Hilda Bastian article loads? With #MEcfs so it appears in searches.

Been reported & sorted.

Latest Annual Report & Accounts: http://apps.charitycommission.gov.uk/Accounts/Ends19/0001036419_AC_20170331_E_C.PDF

Some info about AfME at Charity Commission here: http://beta.charitycommission.gov.uk/charity-details/?subid=0&regid=1036419

Radio 4 Today coverage possibly at 8.45am: Just made the 7am Radio 4 News headlines. Being reported by Catherine Burns: health correspondent, but interestingly was Newsbeat, which did get into deeper ME issues at MillionsMissing this year.

Guardian coverage now up: https://www.theguardian.com/society/2018/dec/17/chronic-fatigue-syndrome-could-be-triggered-by-overactive-immune-system?CMP=Share_iOSApp_Other

Could this possibly be the beginning of a phased climb down?

Merged thread Tom Feilden just posted:

Yes - confusing: have edited the thread title to make clear it relates to individual patient data.

It looks to me like this has actually happened- not sure if I can quite believe it. Link: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD011040.pub2/full

Full response: