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  1. It's M.E. Linda

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Me too. I found it buried in amongst the ‘Social’ emails, so “Thank You” @Trish !
  2. It's M.E. Linda

    United Kingdom: reMEmber news

    Another excellent conference on Sat 19.11.2022 See Dr Muirhead’s reminder of the “GMC Duties of a Good Doctor” (I took a screenshot, as I thought it could be useful to have!) https://www.s4me.info/threads/i-emailed-my-doctor-133-times-philosophytube.30456/#post-447690 Edit: correct link
  3. It's M.E. Linda

    I emailed My Doctor 133 Times.. PhilosophyTube

    I attended an online conference at the weekend and, interestingly, one of the doctors presenting produced this “GMC duties of a good doctor”. I thought it was good to keep in the arsenal, should a letter to a Practice Manager/complaints Dept was ever needed. I hope it is helpful...
  4. It's M.E. Linda

    BMJ: Activists demand more funds for ME research

    There were some tweets posted by MEAction Network U.K. 25 October on the ‘red thread’ campaign. I should imagine that their U.K. volunteers are recovering from organising the event (I don’t think they have many, and the vast majority have ME).
  5. It's M.E. Linda

    BMJ: Activists demand more funds for ME research

    I obtained a full pdf which my Braincell is absolutely refusing to transfer into the forum. The full BMJ article is much better than the heading (see thread title) implies: “Demonstrators in London’s Parliament Square last week called for hundreds of millions of pounds missing from research...
  6. It's M.E. Linda

    Orthostatic and Exercise Intolerance in Recreational and Competitive Athletes With Long COVID, 2022, Rao, Systrom et al

    The link to Vimeo film shows as private at the moment. Think you may need to have to register in order to be able to view.
  7. It's M.E. Linda

    Can I change my GP record terminology (UK)?

    I have been reading about coding/SNOMED for a while (and struggle badly because it is so complicated to get the hang of). However, back in May, I was wandering the internet and discovered further details of these CTV3 codes (click to view, click on right arrow to view codes for moderate and...
  8. It's M.E. Linda

    OMEGA AGM 2022 with Caroline Struthers on Medical Research : 29th Oct

    Thank you :emoji_ok_hand: I will try to find contact details to ask OMEGA too
  9. It's M.E. Linda

    OMEGA AGM 2022 with Caroline Struthers on Medical Research : 29th Oct

    Do you know @Sly Saint whether this meeting will be recorded for future viewing please? I would be very interested in hearing @Caroline Struthers speak but am unavailable that day and also would need to split into a couple of viewings. Many thanks.
  10. It's M.E. Linda

    Brain fog, cognitive dysfunction

    I have suggested Cognitive Impairment from the series of Dialogues films by @Natalie, to help inform the realities of brain fog.
  11. It's M.E. Linda

    Cognitive-communication difficulties in adults with Long COVID, 2023, Cummings (has ME/CFS control group)

    Very grateful to Prof Cummings for emphasising these points, as I requested (my bolding): “By the time they came forward to participate, they had already experienced considerable improvement of their cognitive-linguistic difficulties. If these same participants had been assessed several months...
  12. It's M.E. Linda

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Very important point @Caroline Struthers , especially if any stakeholders have ME/CFS because we all know that everything takes that much more effort to read, consider, reply. ‘A very short consultation period’ = Another example of ableism?
  13. It's M.E. Linda

    The quest to show that biological sex matters in the immune system

    Listen to the “Genetic Gender Gap” BBC Radio 4 programme from April 2020, Dr Sharon Moelem was extremely interesting. https://www.s4me.info/threads/bbc-radio-4-start-the-week-%E2%80%93-the-genetic-gender-gap.14507/
  14. It's M.E. Linda

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    It stands for “Continuing Professional Development”
  15. It's M.E. Linda

    The Relationship between Physical Activity and Long COVID: A Cross-Sectional Study, 2022, Wright et al

    Another tweet by one of the authors my response ETA I must read all this more carefully. Concerned by the repeated use of ‘chronic fatigue syndrome’ on a paper written this year…..:banghead:
  16. It's M.E. Linda

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Well deserved for this kind and caring team. Congratulations @Natalie and Josh and thank you for producing such excellent films.
  17. It's M.E. Linda

    London Centre for Functional Medicine: Chronic fatigue

    Thanks both, I will suggest that to @Russell Fleming, especially if some Technical Wizard* can confirm that an email alert can go to a member when they are tagged? * @NelliePledge / Moderators - May we have assistance in whether this alert could work please?
  18. It's M.E. Linda

    London Centre for Functional Medicine: Chronic fatigue

    Swift response from Russell of ME Association received today: “As you can imagine, the more letters that Dr Shepherd writes, the more requests we receive from the community about other health websites in the UK (and abroad!). For now, we are prioritising NHS websites and continuing to work...
  19. It's M.E. Linda

    London Centre for Functional Medicine: Chronic fatigue

    I have emailed the MEA to ask whether this is another example where Dr Shepherd might be able to complain to the Advertising Standards Agency.
  20. It's M.E. Linda

    UK: The Yellow Card Scheme has been confirmed as the route to report 'adverse incidents' from GET and CBT (or has it?)

    Thought I should add Sally Callow’s #ShakeItUp Campaign details in here, because she continues to work on this. See the ‘Updates’ section of the petition, where she details replies received or thoughts on the next steps eg July 2022 - not connecting with Rt Hon Steve Barclay yet, when the post...
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