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Sorry to hear that you have Covid again. Please Contact your GP asap. If they agree to nominate you for anti virals, it has to be done pretty quickly after infection confirmed (friend with RA received them last year). Anecdotally, I am not sure how successful you will be in persuading your GP...

I have added this to Nikki’s thread:

Since the pandemic, I have enjoyed attending their annual conferences because they were run online. Very knowledgeable. I hope Bill and Janice can enjoy some well earned retirement.

Does one need to have “a certain standing” in the medical community to follow/read certain medical professionals?

@SNT Gatchaman thank you for providing screenshots/details of TG’s tweets because not all of us can read them thesedays. This thread was very interesting

Many thanks to @obeat The charity’s nurse has just confirmed to me that: “the final webinar on Severe ME, by Caroline Kingdon and her research colleague - yes the plan is that it would be recorded too, and available after in the same way via the page tiger online” So this will be another...

Hi @SunnyK I hope something here is of help to you. I have worn a FitBit Charge 4 (recommended to me by a friend in the local support group) since March 2021. I use the free FB app together with a free app called Cardiogram which has an area for notes, so I can record what I am doing during...

Moved posts Meanwhile I completed a simple ‘contact us’ form about a page on the NHS website last week, which went to NHS Digital, only to be told that it should be referred to NHS England this week. So I had to start all over again. I only used what was available on their own website. Still...

Do you know whether this will be available afterwards as a video resource please? We are due to start Implementation of NG206 within our local ICB very soon. Resources such as this would be fantastic to offer to the Commissioning Manager/Medics for viewing. Thank you and :emoji_fingers_crossed:

Link to Parliament website which gives access to watch the proceedings via Parliament Live TV: https://committees.parliament.uk/event/17335/formal-meeting-oral-evidence-session/

Sorry to hear your experience @Sallycatherineharris - I hope you are able to pace yourself very gently through the required recovery. It sounds as if you are well aware of the need to go slowly. Sharing the Physios for ME link here, just in case you need to refer to it or share their details...

Excellent info thanks. The above link by @Suffolkres only went through to a generic RCPCH page today, so I searched for the 2004 document . Hopefully this works...

SevereME: SNOMED coding - https://snomedbrowser.com/Codes/Details/52702003 I would guess that the vast majority of patients in the UK NHS system are coded with “Xa01F” which is the standard ‘chronic fatigue syndrome’ code. Yes there are separate codes for mild, moderate and severe - but I...

On some Facebook groups, the search function allows you to ‘search within the group pages’ (that may be just within private groups possibly?) I knew that I had read a response, so it must have appeared on the MEA Facebook pages. So I searched “Kings College MEAssociation” and some options...

Nothing on MEA website, I found a further response by Dr CS of MEA within this Facebook post: https://m.facebook.com/story.phpstory_fbid=pfbid0D23eVJX7qLyXEAM2h4fEmuYR8H6t3n4iKpUvDVPwmPQV1sFqZHw54qpcYnm6PPzfl&id=171411469583186

Thank you @CRG - I thought my tweet of yesterday was depressing enough, but have amended to include your excellent breakdown & RT to include Tulip Siddiq, MP

For info - known issues with certain makes of mobile phones: “Hi Linda, I’m one of the team at Visible - I hope you don’t mind me reaching out! Since our launch we have become aware that Visible’s morning check-in (the camera-based HRV measurement) doesn't work too well on certain phones. It...

We have finally been given the contact details of who will be leading implementation of the NICE Guideline in our County. Sheffield’s excellent report/Infographs arrived in my inbox this week, so the members of our little working group are busy reading it all to ‘borrow’ as much as we can...

It upsets me when people say they were athletes “before”, almost as if not being an athlete prior to infection means that any resulting ill health is all ‘our own fault’. Whilst not an athlete, in 2013, I was probably at one of the fittest times of my life (despite a previous brush with PVFS...

Fabulous blog @Lucibee - thank you