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Very interesting, this has also been proposed as a valid approach to CFS/ME. Chronic epipharyngitis: A missing trigger in chronic fatigue syndrome Does anyone know if there is a risk of loss of sense of smell (anosmia) with this procedure, as has been reported with zinc containing nasal...

Whenever I’ve moved to a new GP practice I’ve always asked if any of the doctors have a special interest in ME/CFS. That might have been a mistake — it’s becoming apparent that an uninformed (but kind) doctor is better than a misinformed one. An Audit of UK Hospital Doctors’ Knowledge and...

I tried it and it was energising but had to stop due to palpitations, just something that I’m susceptible to, perhaps. I think one needs to be careful about the source of the shilajit to make sure it’s not contaminated with high levels of heavy metals, etc., so chose a reputable supplier. I...

From the Patient Information Sheet page 3, Screening Visit: From page 5, Exercise Stress Test and Assessment Visit 2:

https://www.theguardian.com/world/2022/jan/02/neurological-illness-affecting-young-adults-canada?CMP=Share_iOSApp_Other

How deeply ironic of the Maddox committee. Perhaps they should get their 2021 winner to cast an eye over the work endorsed by their 2012 winner?

https://www.theguardian.com/world/2021/nov/08/french-couple-wins-legal-fight-wind-turbine-syndrome-windfarm-health?CMP=Share_iOSApp_Other

It's worrying. A relation of mine knows (or used to know) Professor Sir Michael Rawlins, ex-chairman of NICE (1999-2013). It was 2007, we were talking and they told me that M.E didn't exist (they knew I'd been diagnosed and unable to work for several years by this point). 'Oh really, what makes...

Fluoroquinolone antibiotics might cause increased degradation of collagen. Could there be a higher past exposure to fluoroquinolones in this patient population compared with normal healthy people? Or perhaps it could be incidental to reduced activity and lower levels of fitness?

Sorry, I don't think I can even get past the title! When they start throwing around the word 'interdisciplinary' you know you're in trouble. They don't know what to do with you. Perhaps less responsibility for the individual physician and more discipline for the patient will help?! That's what...

I agree. If they want to disassociate themselves from the morass of CBT/GET research, then fine, that’s understandable. But if they expunge CFS then they also lose the >5,000 biomedical studies done on patients diagnosed based on CFS criteria, eg the widely used CDC criteria, while...

Yep…

Ah sorry to hear that. I only joined the webinar for 15 mins today but noticed they were recording it, so I’ll watch more later. It looked interesting - something about, could mitochondria have a role beyond energy production? Could they be involved in pathogen response? He also discussed the...

It was recorded, so hopefully will be available later.

I think that tweet from Dr Phil looks like an attempt at humour in response to the ‘science is certain’ remark from an ME patient, which he’s wilfully taken out of the CBT/GET doesn’t work context it was relating to. He’s ironically pointing out that if the ‘science is certain,’ then where is...

I like the look of Dr Martha Clokie, she comes across as genuine and has a strong background in phage research. See video: here, the whole thing is interesting but moves on to talking about complex diseases at 1:00:47, and then borrelia.

Long Covid: Early findings bring hope for diagnostic tests https://www.bbc.co.uk/news/health-57776010 Also, Panorama tonight may be worth watching: Panorama's Long Covid: Will I Ever Get Better? BBC One at 19:35 BST on Monday 12 July and on BBC iPlayer.

Yep, she was staring down the barrel of M.E but craftily managed to disarm it by playing dead. Paul ran away hither and thither, flailing his arms.

I think the phrasing of that question is ambiguous, what are they driving at? I mean, yes, I'd believe that to the best of their ability the doctor was unable to objectively demonstrate any abnormal findings, and to some extent this depends on their own bias and view of the illness, and what...