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    Fatigue as the unconscious refusal of the demands of late capitalism, 2021, Diserholt

    This is a Lacanian exploration ! Which means the work only exists within the terms of Lacan's set of theories about how the world, including the human mind, is. That Diserholt doesn't concern herself with the reality of ME/CFS for patients, nor with medical science is of no consequence for the...
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    Can I change my GP record terminology (UK)?

    That's the SNOWMED code for CFS - https://snomedbrowser.com/Codes/Details/52702003 For explanation of (UK) SNOWMED https://digital.nhs.uk/services/terminology-and-classifications/snomed-ct You'll see on the CFS code page that the ICD.10 equivalent is G.933 which is listed under diseases of...
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    UK: Major study on how benefit sanctions hit health is SCRAPPED

    Daily Mirror: Chaminda Jayanetti Major study on how benefit sanctions hit health is SCRAPPED after DWP pulls out A major study on how benefit sanctions hit poor Brits’ health has been scrapped after Tory ministers quietly pulled out. The Department for Work and Pensions (DWP) has decided...
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    The promise of a model-based psychiatry: building computational models of mental ill health, 2022, Hauser et al

    The promise of a model-based psychiatry: building computational models of mental ill health Tobias U Hauser, Vasilisa Skvortsova, Munmun De Choudhury, Nikolaos Koutsouleris Summary Computational models have great potential to revolutionise psychiatry research and clinical practice. These...
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    Compassion-Focused Therapy for an Older Adult with Motor Functional Neurological Disorder: A Case Study 2022 Zarotti et al

    Compassion-focused therapy Compassion-focused therapy integrates techniques from: Cognitive behavioural therapy (CBT) Developmental psychology Evolutionary psychology Social psychology Neuroscience Buddhist philosophy How does CFT work? According to CFT theory, there are three emotion...
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    BJGP LONG READ ‘Delicate diagnosis’: avoiding harms in difficult, disputed, and desired diagnoses, BJGP Life, 7 October 2022

    Disease burden is complex and there's no reason to conclude that issues with diagnosing disease separates the UK from its comparators. One way to make comparisons across populations is to use Disability-Adjusted Life Years (DALYs)...
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    Evoked potentials - Neuro-electric responses to sensory stimuli

    Copied post Perhaps a distraction as Cognitive status isn't included in the above list, but Evoked Potentials if relevant to ME/CFS offer a possibility of providing objective measurement of neurological change, which to date hass only been explored in limited studies*. The clinical role of...
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    Long Covid in the media and social media 2022

    Posting this here as although only tangential to COVID, it provides a useful caution about UK stats post epidemic - very much an outlier when comes to the 'out of work due to illness' figures: and
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    Wesselys Mental Health review could also replace Mental Capacity Act

    Is the recognition of multimorbity not an advance in the field - for example understanding addiction in an individual as a separate health issue from the Bipolar illness for which the patient is self medicating with addictive substances ?
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    Factors that influence how relationships adjust to a diagnosis of chronic fatigue syndrome: A grounded theory, Swinton, 2022 (thesis)

    Deserves a dedicated reading which I don't currently have the reserves for, however on a skim through it looks like a thorough piece of work that stands up on its own terms. The author had sheer bad luck that their period of study didn't encompass the publication of NICE 2021, although she does...
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    Wesselys Mental Health review could also replace Mental Capacity Act

    Written evidence submitted by Professor Michael Sharpe, Professor of Psychiatry at Oxford University, UK (MHB0001) Mental health act and general hospitals "I write as a professor of psychiatry who specialises in psychiatry in the general hospital. My point is a brief one: Has the new act and...
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    Why So Many Doctors Doubt Patients With Long Covid | Psychology Today

    "Yochai Re’em, M.D., is a psychiatrist and psychotherapist in New York City, and a Clinical Assistant Professor of Psychiatry at Weill Cornell Medicine. He completed his psychiatry training at NewYork-Presbyterian Hospital/Weill Cornell Medicine and earned his medical degree at NYU. Re’em has a...
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    Research priorities for ...(ME/CFS): the results of a James Lind alliance priority setting exercise, 2022, Tyson et al

    No statement of limitations. I don't think a paper should sound quite so pleased with itself. My overriding gripe - not one appearance of the word "epidemiology".
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    United Kingdom - Thérèse Coffey appointed Secretary of State for Health and Social Care, Sept 2022

    UK primary care - mainly GP run health centres, don't routinely have diagnostic tech onsite, so the GPs refer a patient on to what are usually hospital based technician run services, prior to (where diagnostics indicate) further referral to a hospital based Specialist Consultant led team...
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    UK Royal College of Psychiatrists

    For non UKers - the Panorama programme is the oldest documentary format on the BBC - highly respected and generally of sound, and frequently of excellent quality. I watched the Mental Health Unit exposé in full on the day of broadcast - it is available on the BBC website for streaming...
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    General Anesthetic and Severe M.E

    Leaflet available online, cost £1 - https://meassociation.org.uk/product/anaesthetics-your-questions-answered/ Not personal experience but you might want to focus on Pre Anaesthesia drugs where there may be more latitude in choice/avoidance/inclusion than on the actual GA being used...
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    United Kingdom: Action for ME (AfME) news

    https://www.actionforme.org.uk/news/%E2%80%8Bmedia-guidelines-consultation-thank-you/ "Media Guidelines consultation: thank you September 15, 2022 Last month, we launched a consultation on our new media guidelines for journalists, and it closed earlier this week. We received a lot of...
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    Percentage of people with ME/CFS able to work or attend school

    Aside from the other issues already raised, problems arise from the lack of precision in the statement that "75% are not in school or work" - the formulation needs to be of the order: "X% of school or working age people with ME/CFS are in either education or employment" or the reverse...
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    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: First Described Complication after Gam-COVID-Vac Vaccine, 2022, Manysheva et al

    The vaccine that is implicated here is the controversial Russian designed Sputnik V. Even if there is some linkage between the patient's ill health and the vaccine, this is unlikely to tell us anything about COVID 19 vaccines generally...
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