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ME double confusion ! Even so I don't see the PT post as any more malign than the OT post. If we are talking about the ad structure, then however bad, it does only have a very small target audience, if the actual job structure is of concern then being shared across services or departments is a...

References are to studies that include the word "fatigue" - I got as far as five of them before giving up - some of the studies have Chronic fatigue syndrome in their reference list and/or discussion, others no mention at all. The 45% prevalence claim, even just for chronic fatigue seems...

:banghead: now amended. It's this: https://www.england.nhs.uk/statistics/statistical-work-areas/covid-19-post-covid-assessment-service/

UK - NHS England. COVID-19 Post-Covid Assessment Service This publication contains information on activity and demographics of patients who have been referred to a Post-Covid (Long Covid) assessment clinic in England. It includes data at both national and regional level. Background Information...

Sci-hub stopped taking new docs sometime toward the end of last year - I don't know if there's any intention to change that policy.

I read it somewhat differently. It's not unusual for an OT to have a broad range of health impairments within their client group - in this case the OT is taking clients from two separately defined services, the HIV service and the ME/CFS service. It may be unfortunate wording - though of course...

There seem to be only two references that link to published ME/CFS work "Long-COVID has a similar presentation and course as other post-viral syndromes." = Ref(4)discussed at...

From same authors: https://www.s4me.info/threads/preprint-cfs-me-fm-%E2%80%9Ctherapeutic-test%E2%80%9D-and-treatment-clots-and-hypoperfusion-2021-chang-figueredo.23785/#post-397271 defining post of that thread IMO...

2014 article here: https://www.s4me.info/threads/channelopathies-2014-june-bum-kim.30137/

Channelopathies June-Bum Kim Abstract Channelopathies are a heterogeneous group of disorders resulting from the dysfunction of ion channels located in the membranes of all cells and many cellular organelles. These include diseases of the nervous system (e.g., generalized epilepsy with...

https://www.s4me.info/threads/laboratory-diagnosis-of-lyme-borreliosis-current-state-of-the-art-and-future-perspectives-2018-lohr-et-al.30130/

Laboratory diagnosis of Lyme borreliosis: Current state of the art and future perspectives Lohr, B., Fingerle, V., Norris, D. E., & Hunfeld, K.-P. Abstract This review is directed at physicians and laboratory personnel in private practice and clinics who treat and diagnose Lyme borreliosis...

Interoceptive technologies for clinical neuroscience Felix Schoeller* [1,2,6], Adam Haar Horowitz [1,3], Abhinandan Jain [1], Pattie Maes [1], Nicco Reggente [2], Leonardo Christov Moore [2], Giovanni Pezzulo [16], Laura Barca [16], Micah Allen [4.5], Roy Salomon [6], Mark Miller [7], Daniele...

Speculative and I think largely unsupported by any subsequent work, or at least not further explored: Sci Hub link: https://sci-hub.se/10.1054/mehy.1998.0822 "INTRODUCTION Chronic fatigue syndrome (CFS) is a common disorder characterized by fluctuating fatigue which is induced by stress...

I'm not sure that the underlying research philosophy of this type of study allows doing things very differently. Although not stated this seems to be a piece of 'qualitative research', indicated by use of the term "opportunistic sample". By its very nature qualitative research is fuzzy, but it...

The NIHR Oxford Biomedical Research Centre has 20 themes but the other centres appear to have fewer but different themes. NIHR is funding research into post acute Covid sequalae: Research into long COVID and of course NIHR is part funding DecodeME. Also important to remember that NIHR is not the...

We shouldn't expect that and should not be disappointed if it doesn't happen, whoever is next in post - and we don't know even if any of the current Cabinet will be invited to stay in post, so no automatic change at Dept of Health. The reality is that the UK is in an exceptionally 'stressed'...

Without commenting on 'what's the best organisation' - orgs each set the own priorities and it's a matter whether each of us as individuals share those priorities or not - the two UK orgs to consistently put charitable funds into biomed research are: MEA The Ramsay Research Fund donate via...

This may have significance for studying cognitive deficits in individuals and populations who are not first language English speakers, this likely includes ME/CFS patients with cognitive problems. Given that cognitive impairments are for many patients a key characteristic of ME/CFS this is an...

Over-reliance on English hinders cognitive science Damián E.Blasi, Joseph Henrich, Evangelia Adamou, David Kemmerer, Asifa Majid Highlights The cognitive sciences have been dominated by English-speaking researchers studying other English speakers. We review studies examining language...