Search results

Is there a way you can have your own comfy bed in a different room than your husband ? Ideally you should go to bed when you feel tired, before falling asleep on the couch. You need your own bed with no noise and disruptions. It took me almost 3 years but I finally found a combo to help, on...

Update : I have found 4 meds/supplements that help me sleep. I now rarely wake up and when I do, I can fall back asleep. This is helping me have an easier life with less symptoms. I alternate between melatonin 3mg, benadryl 25 mg and sublinox 2,5 mg. I also have zopiclone to replace...

You were never prescribed antibiotics ? I finished my 10 day course and I think it’s actually helping.

I was going to say I wish for many, many more members but wouldn’t it be nicer if nobody ever needed to join anymore ? Anyways, congrat S4ME !

I heard it’s coming to Netflix Canada in january 2018 !

I find this paper useless. Not much to be learned from it. We’re not even sure what they mean by it...

I like the spoon analogy, not so much for myself, but to help explain the illness to neophytes. I think the reality of ME is way too complex to explain with such a simple and linear concept.

I’ve « only » been sick for a little over 3 years and I still have all my initial symptoms except hypoglycemia. This one was really scary so I’m glad it’s gone.

I am allergic to pets and I have 2 small dogs, so I figured this might be part of it. The weirdest thing is I don’t even know what symptoms the sinusitis is bringing on. I mean if the MRI hadn’t caught it, I would have never known I had this problem. Weird !

@Webdog thanks a lot ! I’ll look into it. My ENT is young but closed minded. I’ll buy it online if antibiotics don’t work.

That is strange. My CT-scan definitely shows chronic and acute inflammation, even pus. How do they explain you’re having no signs of sinusitis ?

@Melanie I didn’t know about fibro and sinus infections, I’ll look into it. Thanks. I supposedly have fibro as well as ME.

i’ve had chronic sinusitis for a few years. I just had an MRI to check it and it was found that on top of the chronic sinusitis (in 3 areas) I also have acute sinusite with pus. ENT doc put me on Clavulin 875 twice a day. She asked me if I had a cold when the MRI was done and I had none. She...

Dr Hyde is supposed to be one of the speaking guests. Since I’m close to Montreal, I definitely want to go ! Hoping it will be open to the public !

I had a SPECT scan by Dr Hyde and it showed moderate to severe brain injuries in multiple areas of the brain.

The problem is that it’s an off the shelf prescription and everyone is scared to prescribe something used short-term on people who had a stroke to treat someone with ME long-term. I am hoping that since I have been using it for a long time, they are more scared to make me stop it, lol!

Thank you ! Can a polysomnography test detect DSPD or N24 ? If not, what could ?

Good question ! I had lowered my dose to a strict minimum at the beginning of summer. I didn’t realize it at first, but 2-3 months later I was a mess and all my symptoms had increased in a somewhat drastic way. I upped my dose again about 3 weeks ago and went back to my previous condition...

This has killed any hopes I had as well. From now on I will concentrate on trying to accept this illness and make the most I can out of life. When, and if there are any real developments in research towards treatment, I’ll be ready for it but not longing for it anymore if I can help it. I...

It’s hard to get here as well. When my prescription runs out, I will have a hard time getting a new one !