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Adam, this is vital to counter FII. Can't stress this enough. Savey ME knowledgeable LEA officers and specialist teachers are often the only professional allies that families have in defended against aberrant medics and Social Workers . Ask Tillly!

Key issue is Education AND Health Care Plans.. currently in the news. Also PRU staff were/ are specialist 'trained' to deliver health specific interventions... as are lots of staff in Specialist settings. I was in service trained in early 2000, but would have balked at delivering certain...

Not quite. Social Workers are LA and NICE had to cover them to be compliant with 2014 Health & Social Care Act. It's my understanding from reading all the NICE background information that the NICE remit has evolved and now also has reference to others in LA like LEA staff. I drew action to this...

Thank you Jo. In my post, I spoke as an affected parent but separately, I can also speak as an educational professional as well, working with this specific disability group for nearly on 3 decades, between 1991 - 2019 which included many with ME and CFS. We had some excellent CAHMS...

"We started to play the game - go along, agree goals then ignore them. We also needed "experts" to provide letters for schools, exam boards etc. We were fortunate not to be pressured into inpatient stays, and their regular programs which involved attending weekly were deemed too much travel."...

There might be a couple of slide/ ideas contained in a power point which was to raise awareness with Social Workers?

Who is Wessely? A chameleon.... who changes his rhetoric to suit the occasion or the audience. A real establishment behind the scenes man. With equally ambitious wife, has resulted in disservice to an enormous number of patients; whether that be ME or Gulf War Veterans or those poisoned at...

Jo is an inspiration. Featured in the Eastern Daily press this week and postering for next week's 11th Awareness Day. She is doing Suffolk and Norfolk Proud!!

He is SO 'authoritative' so slick in delivery with SO much innuendo and suggestibility. He actually reminded me of David Irving in the David Hare written drama documentary 'Denial' screened two days ago and worth watching. It seems Irving was of a similar personality and had a similar persuasive...

Suffolk parents are working with Fightback.

Moderator note: This post has been moved from this thread Why Sir Andrew Dillon MUST be challenged as must NICE in their new ME Guidelines .......... Contaminated Blood/worst treatment disaster in the history of the NHS yet a public inquiry has taken 30 years to take place. Lack of continued...