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  1. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Perhaps his new persona involves mimicking a ventriloquist's dummy, or a puppet like Punch?... "That's the way to do it..."
  2. Suffolkres

    NICE ME/CFS guideline - submissions to the draft guideline consultation, December 2020

    https://25megroup.org/nice-guidelines https://25megroup.org/nice-guidelines?fbclid=IwAR2U4FU_O0OdYsNA9sB3oF6qTM-Lli87JEXU7rngOD8m18asMokUaLl0WXs
  3. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    The main impact will be on the decision making process at the new regional level- Joint Strategic Commissioning Process within each CCG Alliance or 'Sustainability & Transformation' planning mechanism. Patient Groups can involve local Health Overview and Scrutiny Committees to make sure the...
  4. Suffolkres

    Gulf War Illness - causes

    'While the exposure to sarin gas from the Iraqi enemy most likely is to blame for the Gulf War Syndrome, the researchers also say the liberal use of pesticides as insect repellent may also have been an 'own goal' and compounded the damage from sarin gas and contributed to the prevalence of the...
  5. Suffolkres

    Gulf War Illness - causes

    =AT25vxMZOC9yc2g7Plhs8S0Nodsy-Nbl5GfAPCIfkD5f_4dp1UvDI1FrEMp0re0Q6-UOr-hZgSynCHGySnIJ1ZILhDkUBnu8tTnApZnMYyfKVA4Kreex68tDR1ntF4S1F2VrfYqXVzNX6jW9SSQrVz_bkds']https://www.dailymail.co.uk/.../Gulf-War-syndrome-not... Gulf War syndrome which left 250,000 veterans suffering long-term fatigue and...
  6. Suffolkres

    ExFACTR Study: Exploring the Feasibility of ACT for Children and young people with CFS/ME ... in prep. for an RCT. Crawley et al. Recruiting Jan 2021

    Can anyone point me to where I can see where the funding for this is coming from ?-it's fairly urgent. Thanks
  7. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Been thinking about the gravity of what is going on and that Robert M has issued a complaint following appearances on the 2th January 2021. The BBC should be taken to task in my view....for appealing to people like CG to Talk Up and to mislead people. An apology should be forth coming. May 15...
  8. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    https://phoenixrising.me/archives/17049 Dr Clare Gerada steps into the lions’ den and “tells it straight” – attempts to “build a bridge between the largest Royal College and a very important problem” – hopes to “be better able to work with you to improve the care you receive from my profession”...
  9. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Post Covid SMS? Short Memory Syndrome?
  10. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    My Tweet https://meassociation.org.uk/2013/01/invest-in-me-defends-invitation-to-dr-clare-gerada-to-attend-their-annual-conference/ Good2talk! Remember2013? Chair Royal College of GP invited to CPD-Accredited event to explain the effects on GPs & their patients of NHS reforms into the way LT...
  11. Suffolkres

    UK - NHS England online tool and clinics for long Covid.

    Moved post Meanwhile coming up; http://www.nhshealthatwork.co.uk/ A must in March NHS Health at Work (who NICE stated in December that they have no jurisdiction over info advice on ME and CFS!) Our Annual Conference: Wednesday 10 March - Register Now! As a result of the continuing Covid-19...
  12. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I understand but it does demonstrate his influence and skill in getting a message out.
  13. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    https://cidg.cochrane.org/news/co-ordinating-editor-paul-garner-discusses-his-experience-having-covid-19 Well Covid unwell or no, Professor Garner has been making ample use of his experiences from quite early on despite his ''severity' and unwellness'......... Paul’s core blogs BMJ Opinion...
  14. Suffolkres

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    '....the anachronistic primary care system that encourages buck passing on the cheap....' mmm!What you say above sounds spot on Jonathan. .....People should be seen by experts at day one. It would be cheaper but the 'internal market' has prevented anyone from seeing the way forward...." Agreed...
  15. Suffolkres

    EDS and hypermobility syndromes UK funded research projects 2020

    Moved from this thread. Selection of UK based projects Funded Research Clinical Research Major Grants 2020 https://www.ehlers-danlos.com/funded-research/ Headache disorders and craniocervical junction abnormalities in hypermobile Ehlers-Danlos Syndrome Investigating the relationships...
  16. Suffolkres

    EDS, hypermobility, and the link, if any, to ME/CFS

    Moved from this thread: Beyond Bones - relevance of variants of connective tissue (Hypermobility) to Fibromyalgia, ME/CFS - Eccles et al Feb 2020 _______________ https://www.rcgp.org.uk/clinical-and-research/about/clinical-news/2018/june/new-ehlers-danlos-syndromes-toolkit-for-gps.aspx I have...
  17. Suffolkres

    Ehlers-Danlos Syndrome: Immunologic contrasts and connective tissue comparisons, Islam et al, 2021

    https://www.frontiersin.org/articles/10.3389/fneur.2020.00828/full? Signs of Intracranial Hypertension, Hypermobility, and Craniocervical Obstructions in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 'Hypermobility was identified in 115 (50%) participants. MRI of the brain...
  18. Suffolkres

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    1 I have suggested he touch base with Jerome Burne? Jonathan, you have a good relationship with Jerome. You might feel inclined to ask him to get involved to steer this through I would suggest?
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