The main impact will be on the decision making process at the new regional level- Joint Strategic Commissioning Process within each CCG Alliance or 'Sustainability & Transformation' planning mechanism.
Patient Groups can involve local Health Overview and Scrutiny Committees to make sure the...
'While the exposure to sarin gas from the Iraqi enemy most likely is to blame for the Gulf War Syndrome, the researchers also say the liberal use of pesticides as insect repellent may also have been an 'own goal' and compounded the damage from sarin gas and contributed to the prevalence of the...
=AT25vxMZOC9yc2g7Plhs8S0Nodsy-Nbl5GfAPCIfkD5f_4dp1UvDI1FrEMp0re0Q6-UOr-hZgSynCHGySnIJ1ZILhDkUBnu8tTnApZnMYyfKVA4Kreex68tDR1ntF4S1F2VrfYqXVzNX6jW9SSQrVz_bkds']https://www.dailymail.co.uk/.../Gulf-War-syndrome-not...
Gulf War syndrome which left 250,000 veterans suffering long-term
fatigue and...
Been thinking about the gravity of what is going on and that Robert M has issued a complaint following appearances on the 2th January 2021. The BBC should be taken to task in my view....for appealing to people like CG to Talk Up and to mislead people. An apology should be forth coming.
May 15...
https://phoenixrising.me/archives/17049 Dr Clare Gerada steps into the lions’ den and “tells it straight” – attempts to “build a bridge between the largest Royal College and a very important problem” – hopes to “be better able to work with you to improve the care you receive from my profession”...
My Tweet https://meassociation.org.uk/2013/01/invest-in-me-defends-invitation-to-dr-clare-gerada-to-attend-their-annual-conference/
Good2talk! Remember2013? Chair Royal College of GP invited to CPD-Accredited event to explain the effects on GPs & their patients of NHS reforms into the way LT...
Moved post
Meanwhile coming up; http://www.nhshealthatwork.co.uk/
A must in March NHS Health at Work (who NICE stated in December that they have no jurisdiction over info advice on ME and CFS!)
Our Annual Conference: Wednesday 10 March - Register Now!
As a result of the continuing Covid-19...
https://cidg.cochrane.org/news/co-ordinating-editor-paul-garner-discusses-his-experience-having-covid-19
Well Covid unwell or no, Professor Garner has been making ample use of his experiences from quite early on despite his ''severity' and unwellness'.........
Paul’s core blogs
BMJ Opinion...
'....the anachronistic primary care system that encourages buck passing on the cheap....' mmm!What you say above sounds spot on Jonathan.
.....People should be seen by experts at day one. It would be cheaper but the 'internal market' has prevented anyone from seeing the way forward...." Agreed...
Moved from this thread.
Selection of UK based projects
Funded Research
Clinical Research Major Grants 2020
https://www.ehlers-danlos.com/funded-research/
Headache disorders and craniocervical junction abnormalities in hypermobile Ehlers-Danlos Syndrome
Investigating the relationships...
Moved from this thread: Beyond Bones - relevance of variants of connective tissue (Hypermobility) to Fibromyalgia, ME/CFS - Eccles et al Feb 2020
_______________
https://www.rcgp.org.uk/clinical-and-research/about/clinical-news/2018/june/new-ehlers-danlos-syndromes-toolkit-for-gps.aspx
I have...
https://www.frontiersin.org/articles/10.3389/fneur.2020.00828/full?
Signs of Intracranial Hypertension, Hypermobility, and Craniocervical Obstructions in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
'Hypermobility was identified in 115 (50%) participants. MRI of the brain...
1
I have suggested he touch base with Jerome Burne? Jonathan, you have a good relationship with Jerome. You might feel inclined to ask him to get involved to steer this through I would suggest?
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