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  1. J

    Correspondence from the DWP for 2005

    I have this week received these from the DWP. I've had a quick look through. The two things that strike me are that they confirm Aylward continued on the TSC when he left the DWP, despite his myriad COIs, and a briefing from AfME which is of some interest. I'll get more when I can. I'm not...
  2. J

    UK Tues 5 June 2:30 pm - live on Parliament TV - Carol Monaghan to ask for debate on ME

    I understand that, from right: Kerry McCarthy Stephen Pound Carol Ben Lake NickyMorgan AlexChalk
  3. J

    UK Tues 5 June 2:30 pm - live on Parliament TV - Carol Monaghan to ask for debate on ME

    I'd like to know who else there was speaking with Carol. Anyone know? From right: Female Stephen Pound Carol Male (sounded Welsh?) Nicky Morgan Male
  4. J

    The Canary: The truth about NHS research funding that should shame the government

    Great work by all involved. Worth pointing out a couple of things in the government response: First, it doesn't specify 'biomedical', so presumably it includes all research including eg Crawley's work on 'Chronic Fatigue'. Second, the total includes spending by charities etc, so government...
  5. J

    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    I like this line: Functional cognitive disorder (FCD) describes cognitive dysfunction in the absence of an organic cause But of course they're not saying it's all in our minds. And for double top: absence of evidence...
  6. J

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Interesting that Sharpe, who has been insisting on Twitter that he researches CFS and sees that as different from ME, is interviewed as an expert on ME claiming that GET is effective for ME.
  7. J

    David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    Odd. Dropbox to the rescue. I've uploaded it here. https://www.dropbox.com/s/qv46p29wey1tyof/Chronic%20fatigue%20syndrome%20%26%20occupational%20health.pdf?dl=0
  8. J

    David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    It is rather a long one. No idea why. Try this https://tinyurl.com/y8u3c86w
  9. J

    David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    It's difficult sometimes to pin them down, and I hadn't seen that apple/banana quotation, but essentially yes. The label of CFS also avoids the misleading connotations of 'pseudo-disease' diagnoses such as chronic Epstein-Barr virus infection or ME. From...
  10. J

    David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    Beware of their use of language. Sharpe thinks ME is a pseudo-disease. He believes there is only CFS.
  11. J

    Obituary of Michael Gelder Times 28/04

    Thanks, both, that's very interesting. Helps explain perhaps why Peter Tatchell has been so willing to support us.
  12. J

    Obituary of Michael Gelder Times 28/04

    They slip in a reference to 'CFS'. https://www.thetimes.co.uk/article/michael-gelder-obituary-fc0mndtrz 'Under Gelder’s leadership, widely-adopted forms of CBT were developed to treat conditions such as social anxiety, obsessive-compulsive disorder, post-traumatic stress disorder, bulimia...
  13. J

    A series of PACE funding FoI requests

    I don't have anything more on this particular question.
  14. J

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    Agreed about 'lied'. Some may have noted I pointed out Sharpe 'made false and misleading statements'. I have purposely not accused him of 'lying'.
  15. J

    Michael Sharpe skewered by @JohntheJack on Twitter

    No, it doesn't disqualify him, but he was asked by the TSC whether he had any financial conflict of interest. He said he had none. But his royalties and work for insurance companies meant he had a direct financial interest in the outcome of the trial, one which he should have declared and which...
  16. J

    Michael Sharpe skewered by @JohntheJack on Twitter

    Thanks. I confess I did rather enjoy that one. If anyone is interested, the full thread in reply is: https://twitter.com/johnthejack/status/982933386049347585 Then one later with a link to work he did for Unum. https://twitter.com/johnthejack/status/983295771826180097
  17. J

    Statements on conflict of interest of PACE trial TSC

    That's very interesting. And I think you're right that they weren't doing it for the money and couldn't (can't?) see the genuine conflict. I also think that the biggest COI for them was not financial but reputational. They are closely associated with this approach and their narrative of their...
  18. J

    Statements on conflict of interest of PACE trial TSC

    There is none as such. They did have to follow MRC best practice (which I would argue they did not). They also agreed to abide by the Helsinki Declaration (which they didn't, as they didn't tell the patients about their COIs). Each journal where they published (check out the thread on the TMG...
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