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  1. J

    Loneliness, loss and regret: what getting old really feels like – new study 'The Conversation' Carr & Fang 09/2021

    This is a really good article about the research they are doing. It's about old age, but I think many here would recognize a lot of it. https://theconversation.com/loneliness-loss-and-regret-what-getting-old-really-feels-like-new-study-157731?utm_source=twitter&utm_medium=bylinetwitterbutton
  2. J

    Guardian Article on NICE pause

    Jonathan, thanks for all your work with these journalists.
  3. J

    Sense about Science (UK) and subjective outome measures

    It is just my interpretation. It's based on the people involved and especially Tracey Brown who had very close ties with Michael Hanlon and was in my view the prime mover behind the Sunday Times article about harassment. They refused to support Alem Matthees and they have also previously broken...
  4. J

    Sense about Science (UK) and subjective outome measures

    I think these lines by SAS are fascinating. My own interpretation is as follows, given their political and sociological views: 1. Support for current model now untenable given criticism of obvious scientific flaws by people whom they would normally look to as allies. Role of Trevor Butterworth...
  5. J

    What we're not being told about ME - UnHerd (Tom Chivers)

    Knowing how thorough Tom is, I wouldn't be surprised if he has indeed read the 2011 paper.
  6. J

    Harassment claims in the media and social media.

    I did actually start to poke around in this with FOIs. I'll dig them out in next couple of days.
  7. J

    What we're not being told about ME - UnHerd (Tom Chivers)

    He was scornful of Chalder's response.
  8. J

    What we're not being told about ME - UnHerd (Tom Chivers)

    It is good, I think. He is very sympathetic. He also has a very good reputation as a science writer for coverage of crap studies. It's interesting it's in UnHerd as it's a bit 'contrarian' and a lot of readers will instinctively be inclined to Spike crowd. Though not Tom, I should add. It is...
  9. J

    History of NICE decision to set up 2020 Committee

    These are all good responses. Thank you. It is too late now for this article as he was finishing it when I asked. However, I do think it's useful to have the background on this, so am going to change the thread title.
  10. J

    History of NICE decision to set up 2020 Committee

    I think he's going to say that it came after 'patient pressure' and the 'The strong message from stakeholders' is enough of a source for him to justify it. Thanks again Andy and Sarah.
  11. J

    History of NICE decision to set up 2020 Committee

    Thanks. That helps with the history.
  12. J

    History of NICE decision to set up 2020 Committee

    That's great. Thanks, Andy. I've passed that on nd that seems to answer his question.
  13. J

    History of NICE decision to set up 2020 Committee

    TC is just checking a fact about the timeline for the guidelines. Any quick help appreciated. Links if possible to support. Why was there a review started in 2017? Am I right in saying 2007 committee reported. Same committee reviewed in 2010 said all is well. Patients called for new review...
  14. J

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    This tweet by Phil Hammond needs to be seen alongside the one by Sharpe and the admission of harm by Goddard. For over 30 years we have been told that GET is not exercise, that it succeeds through incremental increases and that there is no evidence of harm. They're clueless. It's a complete...
  15. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Not sure if this has been pasted elsewhere, but letter in The Times (London) this morning:
  16. J

    Request for patients' stories harmed by GET

    It seems to have been deleted.
  17. J

    Clinician Conceptualization of the Benefits of Treatments for Individual Patients, 2021, Morgan, Pineles et al

    https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2782140
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