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I think it would be helpful to also include a review of other biomarkers from a different illness group in your review.

Materials related to the definition are linked to on this page...

Thank you very much.

Yes @Dolphin - this project is different from the one whose report was released this week.

I haven't had a chance to read the preprint yet so apologies if my question is answered in it. Did they by chance monitor the mice to see if their LC resolved over time?

To clarify - Schor is NIH director of intramural research.

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@Dolphin's post re Medicare rule on chronic disabling illnesses I would like to know what definition of chronic fatigue syndrome CMS is using and if the rule also applies to ME....

I looked at the site briefly so will not comment on accuracy of material. I am however concerned about the intensity and colors used in relation to the sensory sensitivities many PwME have. (The bright yellow/orange bothered me a lot and (that I know of) I do not have ME.) I also wonder about...

Perhaps their inclusion is to balance the program with "NON-sense"?

I think it may actually be that you have "mistaken effort preference beliefs" ;)

Is there a way to know How many study participants were referred by ME specialists, by PCPs, other? How many were self-referred? If referred by ME specialists, it would be really interesting to know which specialists felt they had PwME on their roster who could undertake such intensive...

Given the intensity of the testing at NIH for this study (lumbar puncture, CPET (even if one day instead of two), tilt test, the metabolic chamber, the blood work and so on) what are the chances that study participants adjudicated to have ME were in PEM the entire time they were there because of...

caution - attitude - not much about this paper seems to be fair and it certainly is not what we were led to expect NOR is it what we deserve!!!

FWIW - I am one of the one who was very concerned about Walitt (and Saligan and.....)

I wonder if we are using language differently. The paper says that there were 484 inquiries for participation. 267 of those were screened out in initial screening. 217 of those 267 had medical record reviews and a phone interview. 146 of those 217 were excluded after review. 44 people did not...

Many people tried to get into the NIH study but were not accepted, so it's not that they didn't come forward in sufficient numbers but the exclusion criteria, etc kept people from participating.

I apologize if this has already been mentioned. EEfRT task has its origins in work on depression and is validated in schizophrenia. (I know you are all shocked at that. ;)) Has it been validated in ME? Other conditions? Examining the reliability and validity of two versions of the...

@Mfairma If you think about it more clearly, you will find you aren't beating a dead horse, it's just that the horse is not preferring effort to its current state. ;)

Reminder - When the study protocol first came out advocates demanded it be improved and to reflect the physiological nature of ME. We DID demand a proper study. NIH did amend it. But as we can see from this article, adjudication may have been required for participation, but that didn't mean...