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@Dechi - what, if anything, happens if you raise your arms (elbows) above your shoulders?

@Dechi Is this feeling as though you will faint when your neck is tilted back or does it also happen if you keep your chin level with the ground and just raise your eyes?

One question is why does this posting talk about a strategic plan encompassing both ME and HPV? Just because (as @Dolphin says) Unger has worked on both doesn't mean there's a solid connection between them - and certainly CDC hasn't been spending a lot of time and effort looking at that. It also...

Thanks @Sly Saint for posting this!

I "knew" Karina had been horribly mistreated but reading this is so difficult. (Can't begin to imagine going through it as she did. These people have no clue how strong she is to have endured this even though it further wrecked her.) People who treat their pets this way would be prosecuted, but...

Yes. He was in it, directed and co-produced it I believe.

I too have wondered if the harm of telling parents not to trust their instincts and not to trust their children has been thoroughly considered. Adolescence is difficult enough so counseling parents not to trust their kids makes it that much harder for the young people and for their parents...

The "authorities" (healthcare professionals, school officials, etc) insist that parents shouldn't trust their children when the child(ren) say they cannot, when the parents SEE the repercussions of exercise/school/exertion.... These things infuriate me!

Thank you!

It's Friday, I have little brain left this week and I am confused as to how there's a "long history of epidemics" yet the first sentence of the abstract says it's noncommunicable. Aren't epidemics infectious, hence communicable?

I certainly hope he won't! (Even if he has a good singing voice.)

Reminder all questions MUST be submitted in advance. (Unlike the NIH format that allows for questions for instance arising from the speaker's talk and allows for follow-up questions/clarification.) MECFSSEC@cdc.gov

CDC Stakeholder Engagement Webinar 16 Sept 2019 3:00 pm - 4:00 pm Eastern Daylight Time CDC ME/CFS Stakeholder Engagement and Communication (SEC) Conference Call participants can either call in using the following information: Call number: 1-888-989-4409 Participant Code: 8773805 or...

The attached may be helpful for US based families of children with ME who are able to do schooling. School nurses, counselors, social workers and teachers can get professional development/continuing education credits while learning about ME and it impact on young people. (Hopefully once they've...

I am glad you included and repeated the need in your comments.

Very significant for POC who are trying to track heart rates. Also makes one wonder about other factors that impact accuracy. "An estimated 40 million people in the United States have smartwatches or fitness trackers that can monitor their heartbeats. But some people of color may be at risk of...

MEAction highlighted the need for a strategic plan in its letter and meeting with Collins last year. (https://www.meaction.net/2018/12/17/meaction-met-with-nih-director-heres-what-happened/ and http://www.meaction.net/wp-content/uploads/2015/05/MEAction-Letter-to-Francis-Collins.pdf) fwiw - As...

@Tom Kindlon -Thank you much!

Our next ME Caregiver Support Call will be on Saturday 20 July 2019 3pm ET. Call details and registration info: https://my.meaction.net/events/me-caregiver-support-call-july-1 TO JOIN THE CALL: https://bluejeans.com/322127464?src=join_info Meeting ID 322 127 464 Want to dial in from...

And yet anecdotally some (I have no idea how many) patients barely have the energy to eat during PEM.