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Yes, he does a lot of philosophizing while trying to portray it as being based in something more substantial. And it's not the honest or logical sort of philosophizing either :-P

No major flaws that would be easy to attack, from what I recall.

They have had positive objective outcomes using Oxford, involving CPET scores. Hence Oxford itself is a substantial problem.

Exercise made me ridiculously hungry afterward. Might have been a pre-ME or mild-ME thing, however. I can have a similar problem now when I'm in imminent danger of crashing.

A little hard to follow, but definitely interesting and useful in challenging the claimed efficacy of IAPT and similar treatment modalities. Basically IAPT is failing to prove that they are helping patients, especially in a meaningful manner (versus some dodgy uses of questionnaires), and the...

Agreed - we're told it's fatigue, so I think we have a tendency to frame our symptoms in that context. I was fairly ambivalent about the use of "fatigue" to describe my symptoms, until I got diabetes. It took at least several weeks before we checked my blood sugar and realized what was wrong...

To paraphrase: "Dozens, if not hundreds, of scientists disagree with everything me and my two buddies have said. But they are definitely wrong, because me and my buddies are very SMRT." I would have thought the widespread starvation in the Netherlands near the end of the war would have been...

... and patient representatives involved, of course? :rofl:

I'm assuming they haven't even attempted to cite to any sources for these claims (beyond other people hypothesizing).

I don't think that's a bizarre thing to worry about ... it's fairly common for patients to get abuse in return for asking for services. Most CFS clinics, for example, do exactly that. The situation certainly is unfortunate.

Someone should tell ME-pedia that international conventions now oppose naming diseases after people. I don't see the point in debating the advantages and disadvantages of something that literally is never going to happen.

The Cochrane mental health group which has laid claim to ME/CFS reviews is one which was started by Simon Wessely, probably for that express purpose. It was founded as a conflict of interest, and I very much doubt that it has since cleansed itself of that. They should not be reviewing ME/CFS...

Very clear and to the point. I also like that the demanded action is relatively mild and very reasonable. No one could rationally object to it:

But data is also available in the US, from the CDC and NIH. The vast majority of people in the US have never heard of NICE or the NHS, so it's extremely odd to prefer NICE as a source over the relevant national agencies which have far bigger and better reputations. I suspect this is a case of...

Yeah, people offing themselves is one thing, but doing it to their kids is inexcusable :mad:

Anyone advocating these "treatments" should be in prison. And anyone stupid enough to force their children to ingest bleach or turpentine shouldn't be parents.

Ferritin can get high due to inflammation and/or certain medical conditions. It's probably a good one to have investigated further.

The impression I'm getting from browsing a variety of research into elevated lactate in the CSF is that it's due to a trigger (the disease, an infection) rather than itself being an abnormality. So elevated CSF lactate seems to be an expected consequence of more general lactate issues. But some...

I had a similar response from an assessor who interviewed me, when I needed a waiver from Dutch language testing to retain my residency. Home testing is not an option - I got the impression that the testing centers don't make any disability accommodations at all, which is par for the course in...

Basically the same symptoms, but apparently not the genetic cause. So perhaps an acquired form of a mitochondrial disease. https://www.lactatelevel.co.uk/contents/en-uk/d27_blood_analyzer.html Excess lactate in the blood can get taken up in the CSF (cerebrospinal fluid) and accumulate.