Search results

  1. JemPD

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    But that previous panorama was before the whole BPS 'mind body connection' business was fashionable, and, before it was BELOVED by seemingly all if not most. They will turn it into 'is ME 'all in your head' & then the BPSers will come on & "explain" how we silly patients dont understand that...
  2. JemPD

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    Sorry I not been able to read your entire post @InitialConditions but if they agreed to a Panaroma right now it would worry me deeply. I long for an expose, of course i do, but given the historic (&current i think - i've seen nothing to indicate otherwise) bias of the BBC towards uncritical...
  3. JemPD

    Issues to consider in dietary intervention studies in ME/CFS

    Perhaps it would be good for the researcher to come here to discuss it? PErhaps that has already been suggested
  4. JemPD

    Dopesick - The opioid crisis in the USA

    No no i'm sure they're not, i realise its a genuine problem. A massive, tragic and horrifying problem. I just meant that the recently revised NICE guideline for chronic pain, may have been a pendulum swing too far in the direction away from prescribing opioids (in the UK), and as i understand...
  5. JemPD

    Dopesick - The opioid crisis in the USA

    ooo i LOVE Barbara Kingsolver! I'd like to try that book but i struggle with certain types of violence and because i have to have audiobook instead of reading its harder to control what you hear. Do you recall if it has any interpersonal violence in it Shadrach? Particularly sexual violence...
  6. JemPD

    Biopsychosocial complexity in functional neurological disorder 2023 Joos et al

    I should bally well think they were! The effects of stigma on mental health and quality of life are i think well documented. Stroke patients = zero stigma. FND/Psychosomatic = massive far reaching stigma, affecting all relationships (family, friends, work, health care, society at large). Not...
  7. JemPD

    Closed UK: DecodeME updates, was recruitment thread.

    This is very good news. Something that can include more people without compromising the science/outcome, is great. Well dome Decode ME team :thumbup:
  8. JemPD

    Trial Report The Psychological Benefits of Forest Bathing in Individuals with Fibromyalgia and CFS/ME: A Pilot Study, 2023, Serrat et al

    Haven't we discussed this forest bathing malarkey before? I'd love nothing better than to go & spend time in a forest, nature makes me happy calms me if i'm anxious etc, but sadly the exertion of doing so makes me more ill, so....
  9. JemPD

    Living With ME - Documentary by Thomas McCann

    Sadly i had to give up on it. There is too much background sound over the voices... a humming/low buzzing behind the first lady & then a barking dog & music behind the family. Its impossible for me with sensory overload/sound sensitivity As @Trish says the youtube subtitles are no good. They...
  10. JemPD

    Anti-convulsants - Pregabalin and Gabapentin

    yes. I feel completely dissociated from myself, i cant feel any feelings. In some ways its pleasant as i feel no anxiety, but then its unhelpful, because things that i need to feel sufficient anxiety about to guide my behaviour, such as speaking to someone about something important but which...
  11. JemPD

    Gentle(st) stretching routine

    i have one of those shiatsu massagers. different brand but it looks very similar. i find it marvellous, although you do have to be sitting up/reclined with cuchions under the rest of your back... i think it would arch your neck too high if supine when using it. But its great because you can...
  12. JemPD

    Gentle(st) stretching routine

    Is there any possibility of your being able to hire someone to come out to you & develop a customised/personalised routine? That's what i did & it was helpful. Actually i did it twice.... Once with a 'yoga & body work therapist' & then more recently with a local osteopath. I had conversation...
  13. JemPD

    Acquiring a new understanding of illness and agency: a narrative study of recovering from chronic fatigue syndrome 2023 Bakken, Strand et al

    i know 'too medicalized'??? lol if only, there is no ruddy medicalization. At all, in my experience. Its all psychosomatic, all the way. LOL
  14. JemPD

    ME patient/campaigner, Joan McParland, has been awarded an MBE

    fantastic news. very well deserved
  15. JemPD

    The Chrysalis Effect

    that sounds like a right packet! wishing you well with it all :hug:
  16. JemPD

    The Chrysalis Effect

    @Joan Crawford hi nice to see you, feels like a while, hope you're as well as you can be
  17. JemPD

    Cognitive Behavior Therapy, 2023, Chand et al

    Just to clarify... I wasnt talking about verbally expressed thoughts. I was meaning thoughts, full stop. ie i get emotions with absolutely no thought that goes with them, none. Its internal thoughts (ie non verbalised), that is part of what CBT is supposed to address.... because the idea...
  18. JemPD

    UK: Invest in ME Conference 2023

    yes good point Trish
Back
Top Bottom