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  1. 5vforest

    Detecting Borrelia Spirochetes: A Case Study With Validation Among Autopsy Specimens, 2021, Gadila et al

    It's frustrating that we're still stuck on the step of "trying to prove microbial persistence" but I thought this study was pretty interesting. Solid team of authors, looks like they used some novel methods for staining the tissues and PCR. The patient in question had an EM rash, was treated...
  2. 5vforest

    Detecting Borrelia Spirochetes: A Case Study With Validation Among Autopsy Specimens, 2021, Gadila et al

    Detecting Borrelia Spirochetes: A Case Study With Validation Among Autopsy Specimens Authors Shiva Kumar Goud Gadila, Gorazd Rosoklija, Andrew J. Dwork, Brian A. Fallon, Monica E. Embers Abstract The complex etiology of neurodegenerative disease has prompted studies on multiple mechanisms...
  3. 5vforest

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Thanks @Forbin for helping to clarify. Maybe they'll have an easier time recruiting long COVID patients. I hope they will make good on Nath's quote to "publish whatever we have right now". At the very least it would help to build / sustain trust between NIH and patient groups, even if the...
  4. 5vforest

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Based on the timelines that were discussed before, if they are planning to process 50 long COVID patients and 50 controls, that will keep them busy for years. From Dr. Nath’s quote above, I am definitely concerned that they have shifted focus. Has any preliminary data or information been shared...
  5. 5vforest

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I just saw that the status is now listed as "suspended": https://clinicaltrials.gov/ct2/show/NCT02669212 (h/t to someone on Reddit for sharing this.) Anyone know what's up?
  6. 5vforest

    [CFS] and Bone Marrow Defects of the Jaw – A Case Report on Additional Dental X-Ray Diagnostics with Ultrasound, 2021, Lechner & Schick

    This is probably the best question that they could answer. Given N number of patients with abnormal imaging, how many of them had abnormalities discovered during surgery? From what I was told by a more "traditional" oral surgeon, there is basically no way to know from the imaging what is inside...
  7. 5vforest

    Tick-borne diseases in Australia

    I think we’re getting way off topic, but I’d just like to add that a lot of these concepts have been discussed quite a bit in the infections sub category.
  8. 5vforest

    Tick-borne diseases in Australia

    ...but what happens if their symptoms improve after the treatment?
  9. 5vforest

    [CFS] and Bone Marrow Defects of the Jaw – A Case Report on Additional Dental X-Ray Diagnostics with Ultrasound, 2021, Lechner & Schick

    Yeah, to clarify, I think this is an interesting concept and I am simply commenting on the impossibility for me, as a patient, to be able to distinguish between something I should be concerned about and something that is not really a problem. I haven’t been able to read past the abstract yet...
  10. 5vforest

    [CFS] and Bone Marrow Defects of the Jaw – A Case Report on Additional Dental X-Ray Diagnostics with Ultrasound, 2021, Lechner & Schick

    I have read a bunch of anecdotal reports of recovery following “cavitation surgery”. Coincidentally, I had all four wisdom teeth out maybe a year or so prior to my onset. I tried to investigate this for myself but the entire field was so full of quackery and woo. I was offered the surgery by...
  11. 5vforest

    High-dose Oral Thiamine Vs Placebo for Chronic Fatigue in Patients With Quiescent Inflammatory Bowel Disease, 2021, Bager et al

    I've taken Thiamine/B1 before, as it is commonly recommended while taking Disulfiram for Lyme Disease. I didn't realize at the time that it was technically a "high dose". I guess it's like Vitamin C, where the common supplement dose is an order of magnitude (or more) above the recommended...
  12. 5vforest

    Transcranial magnetic stimulation - brain stimulation

    Thanks for posting, I was looking for a discussion on here. Kinda baffled by this, to be honest...
  13. 5vforest

    The biology of coronavirus COVID-19 - including research and treatments

    I am hesitant to bring it up, but it seems like there is a growing body of evidence that suggests there are at least a couple repurposed medications that have efficacy against COVID. Something something “big pharma” etc...
  14. 5vforest

    Functional autoantibodies against G-protein coupled receptors in patients with persistent post-COVID-19 symptoms, 2021, Wallukat et al

    No worries, thanks for checking. I think a practitioner that I will be seeing soon uses one of these labs, so I am just trying to do a bit of legwork in order to be more prepared. I appreciate everyone filling in some of the backstory in this thread :)
  15. 5vforest

    Functional autoantibodies against G-protein coupled receptors in patients with persistent post-COVID-19 symptoms, 2021, Wallukat et al

    I wasn’t around for that discussion, and can’t find it with a cursory search. Do you mind linking me if possible?
  16. 5vforest

    Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (2020, Horowitz)

    One thing that I keep coming back to, as I refer to the text of this article (I am personally undergoing a similar treatment), is this: Does this mean that there were additional patients who completed the same protocol, yet *remained* on antibiotics in the next year (presumably because they...
  17. 5vforest

    The biology of coronavirus COVID-19 - including research and treatments

    Has this been posted? I have not yet been able to read the linked paper and evaluate for myself.
  18. 5vforest

    Covid-19 vaccination experiences

    Lol yeah. Or when your usual symptoms overlap with the official list of COVID symptoms, you learn to be less than forthcoming...
  19. 5vforest

    Blog: Working Alongside People with Long Covid: a Psychologist’s Learning

    Indeed. I suppose that on the whole it is good that this viewpoint is being published. But it's also funny to see the author twist himself into a pretzel with sentences like:
  20. 5vforest

    BPS attempts at psychologizing Long Covid

    Obviously the line between “stuff we should pay attention to, in order to refute” and “drivel that is not even worth our time” is not always clear. But I think this is firmly in the latter category. Cultural conservatism is a scourge and I think this article was written for attention and clicks...
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