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  1. dangermouse

    Swollen area on upper thigh

    Wow! Received letter in post for referral for injection! That was fast.
  2. dangermouse

    ME Association and Carol Monaghan meeting with DWP Minister about benefits

    Maybe, yeah. I’ve attended a CFS clinic run by OT’s when first diagnosed and some years later a Fibromyalgia clinic that was run by Physio’s. Neither of which had any lasting or helpful effect. Other than that I’ve had pain relief but couldn’t tolerate it.
  3. dangermouse

    ME Association and Carol Monaghan meeting with DWP Minister about benefits

    “Re-assessments, which form part of the on-going review process, should be reduced in frequency where a person can supply medical evidence to show that their condition has stabilised for a period of years and that all appropriate approaches to management have been tried. Information on 5-year...
  4. dangermouse

    ME Association and Carol Monaghan meeting with DWP Minister about benefits

    Grateful to all who attended to raise these very relevant issues.
  5. dangermouse

    Forward-ME Group Minutes - 8th May 2019

    I agree. Thank you.
  6. dangermouse

    Swollen area on upper thigh

    Yes, it’s the only thing that eases my husbands back and hip pain too.
  7. dangermouse

    Forward-ME Group Minutes - 8th May 2019

    Wow, thank you!
  8. dangermouse

    Forward-ME Group Minutes - 8th May 2019

    “8 Christine had reported that she had been able to convey the reality of ME, the reality of living with ME its impact on daily life and mobility in respect of PIP and also the impact and life changing effect on the sufferer, carers and the whole family. She had also emphasised the particular...
  9. dangermouse

    Swollen area on upper thigh

    Oh, that’s something I wasn’t aware of. Thanks.
  10. dangermouse

    Swollen area on upper thigh

    Yes, that’s the main thing. It was the Dr who insisted on the home visit - I thought I’d heard wrong at first. She was quick too. She’s prescribed more Difflam cream - an anti inflammatory cream that I can use and it helps. I know. Ice helps but I’m limited as to what I can use regarding pain...
  11. dangermouse

    Swollen area on upper thigh

    My lovely lady GP just rang me. She thinks it sounds like bursitis but needs to see it. She asked if I could possibly attend surgery, I can’t at the moment as my ME is bad and I’m not well enough. I told her the waiting room noise etc would not be great for me. She’s arranging a visit for...
  12. dangermouse

    Swollen area on upper thigh

    Thanks @Binkie4 That’s a good idea too - thanks.
  13. dangermouse

    Swollen area on upper thigh

    Thanks for that, yes that would be helpful.
  14. dangermouse

    Swollen area on upper thigh

    Thank you @Trish :hug:
  15. dangermouse

    Swollen area on upper thigh

    Thanks @Trish :hug: I don’t know if I’ll be able to get there, I feel dreadful at the moment. Got bad nausea and breathless - may be a nurofen I took? I’m so exhausted, I just want to be left alone. The thought of a waiting room ... good grief. Edited to update: I’ve had to cancel...
  16. dangermouse

    Swollen area on upper thigh

    Morning @Trish & @Milo I’ve had to make an appointment for tomorrow, I’m dreading going as I feel so unwell and the pain is horrible, but the swelling has increased. I’ll let you know. That’s a good idea Trish, if I can’t make it (being taken by my parents) I’ll at least be able to ask for a...
  17. dangermouse

    Swollen area on upper thigh

    I’ll watch and see if it clears, for a couple of weeks. Not the energy to get to see GP yet. Thanks.
  18. dangermouse

    Swollen area on upper thigh

    I always have pain in my hip joints to varying degrees. Currently I’m having a flare up of pain all over my body, including deep aching joints, tenderness and skin sensitivity that feels sore when anything touches it. I bump into things regularly, sometimes when I’m dizzy, other times when...
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