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Is it normal to be asked to attend a “standard identity check” at the job centre after applying for universal credit? I’m currently on ESA support group and have to move over. when I told them I’m mostly housebound and can’t come in and can someone else go in on my behalf, they told me they are...

I also should’ve scored 8 in several descriptors, but the most they’ve given me is 4. Actually, I think I only got 4 in one category. They completely made stuff up though - like saying I could wash myself above (or was it below) the waist, saying I could cook with assistance etc, when none of...

I don’t use these anymore. I think I remember I used them in hospital and they really helped me a lot, but they are a bit uncomfortable when sleeping on your side with them. I did get the Quieton 3 (or 2?) which were better for side sleepers but still weren’t too comfortable. I think they also...

I’m still shielding. I wear masks when interacting with new people or in public. But, I have also been to a cafe & have eaten with people with my mask off, but I took my mini air purifier (SmartAir QT3) with me. It does make me anxious, but I also want to socialise when I can. I take my mask...

No I didn’t use the QuietOn much before they broke! I do remember taking them into hospital and found them quite useful there to sleep , but they still hurt when sleeping on my side so could only use 1. Then when I got home, I was just using my Bose noise cancelling in-ear earphones / earbuds...

Hi I really need some help! I need to find a clinic that does the Pfizer vaccine, literally anywhere in London at this point. I had the Moderna spring booster & was terribly unwell afterwards - I was also shivering so hard that my mum thought I’d got sepsis & wanted to take me to the hospital! I...

I’m not actually sure if I have small ear canals, but I might do. I feel pain when anything goes too far into the ear. I also don’t use QuietOn- but it’s because they don’t work anymore, and it’s out of warranty now :( btw for all Loop enthusiasts - today I just got an email about the new...

I haven’t yet found any ear buds that are ok for lying on my side. I only use the Loop quiet and even then I only put it on the ear that isn’t on the pillow! The slightest pressure hurts when it’s on the pillow, so I’ve mostly given up on that!

I think I have the first generation of the QC noise cancelling earbuds - Bose QuietComfort earbuds. They dont really cause any obstructions, they are definitely bigger than others like Loop but not too big when lying on my back! I can’t lie on my side with them though. I really like them!

Aah interesting, thank you! I went to a coffee shop at the weekend (which was so wonderful to do!) and the noise was horrendous - Starbucks was so loud! So I put my Bose noise canceling earbuds and put it on the “Focus” mode which I think cut out at least 50% of sound, which meant I could stay...

I use the Loop quiet when in bed (sleeping on my back), or I put in 1 of them (if sleeping on my side). I also have used the Bose noise cancelling earbuds when in bed. Both are comfortable for me - I don’t have shooting pains but I do have very very sensitive ears, that cause a lot of pain...

Did you end up buying these? If so I’d be interested in your thoughts! Hi, which loops do you have? I’m thinking of buying either the loop experience plus, loop engage plus, or loop switch, but not sure which to go for? I am primarily thinking about using them in public places like shops...

I watched my Grandpa die just last month, in exactly the way the Liverpool pathway is described. This is in a big well known hospital here. His food was withdrawn first, even though he was at the time still able to swallow/eat small amounts. He was drinking a bottle of fortisip at a time...

I think that the world is made up of many different types of people. So although there are going to be people who will judge you and think badly of ME, there will be others who won’t (and of those, there will be some who understand more or less immediately, and others for whom it will take time...

Why do you say that? (Also addressing others who have said this is what they expected / no other outcome would’ve been possible). A woman died of malnutrition. She died of not getting enough nutrition into her. She died of this malnutrition despite being admitted to hospital 3 times, precisely...

Can they appeal this decision? what a disgrace. No lessons learned, more ME patients will die.

I didn’t follow up on this as I had a lot of other things going on medically around this time / just after this, sorry. And I haven’t followed up on it since, as I actually forgot about it until you tagged me!

No, I don’t think 30 is the standard on the NHS everywhere, at least not in practice, as I was definitely told to sit up for 45 degrees, both during the feed and for 1-2 hours after. I did a quick google and found a lot of other NHS trusts also mentioning 45 degrees, eg on this page under “my...

[I’m re-posting my post with a new picture, as I think the old picture showed just a hoist but I was trying to show the hoist scales!] I’ve been following this thread for the last few days. Horrified doesn’t even go partway to explain how I’m feeling. But I just wanted to say this for now...

I was in the same position and was able to be weighed. The hoist itself was able to weigh me. And a nurse helped to support my head. When I got a bit better, they did use the hoist to lower me onto a weighing chair. But my experience shows it is possible to do it without a weighing chair if...