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It might be interesting to look at the results from simply asking people who have stopped work long-term due to ill health some questions.... If you could ask in local papers, you should get a spread of respondents? Then perhaps you could look at age of ‘retirement’ and the financial burden for...

Perhaps it just means leaving work before you are ‘managed’ out of your role. I did that. Not much option once all your annual and sick leave are used up and you can’t do your contracted hours....

Fingers crossed for your husband’s possible job opportunities. I’m sure that will help you. :hug: You’ve all had major change, so perhaps it just need more time for the dust to settle? Here’s hoping...

Sorry to hear this. I don’t have any advice I’m afraid, just wanted to acknowledge and commiserate!

:hug::hug::hug: - a few more to keep you going....

Keeping my fingers crossed @Hell..hath..no..fury... that he feels better soon and you can rest enough...:hug:

That sounds like a great idea @Graham - I know for one that you will write a great letter so I’d be extremely pleased to put my name to yours! :D

With any luck, the journals will now be much more wary of publishing research like this. Especially when the flaws have been so nicely outlined by DT for the world to see!

Perhaps your thread title is misleading then Hip?

So- they must be collecting all the questionnaire data as part of the feasibility trial if they are planning on including these participants in the full trial....? Which means they have all the outcome measures to look at before the ‘full trial’ technically starts.

Could you ask them @Jonathan Edwards ?

So according to these theories, no-one with profound aphasia should get depressed? No inner language = no ability to think bad thoughts? Which is of course, absolute rubbish. The whole area of inner language is fascinating to me. I ask people with aphasia if their ‘thinking’ is different and...

https://www.thetimes.co.uk/edition/news/pick-up-thy-bed-and-work-out-gps-give-rest-cure-its-marching-orders-792w52z38 Under the NHS-wide Moving Medicine project, due to begin on September 10, GPs, nurses and other health professional will be given scripts to help them persuade patients to...

I’m gobsmacked that the chair of the MRC does not grasp the fact that an unblinded trial with subjective endpoints, where participants are encouraged to say they feel better is not sound science.

Short article in online version of The Times today reporting on the letter to the Lancet. Written by Tom Whipple- that the Lancet declined to comment.

I’m looking forward to the actual paper coming out - as long as I can make sense of it...!

My hair has been falling out over the past few years.... i think it’s TE loss rather than anything else. So far, I’ve been able to cover up the thinning by getting more of a fringe. I don’t know if it’s hormones or ME... I’ve tried various supplement and decided that actually nothing makes much...

I think the woman on the left has got vinaigrette....hence he’s scoffing at her for not preferring mayo...

My dad has a myositis... but they don’t know more than that.

@B_V does this mean the specialist thinks you may have some as yet unknown type of muscular dystrophy? My father had a muscle biopsy last year - no diagnosis forthcoming but now they are sequencing his genome.... He doesn’t have the fatigue - and I don’t have the muscle wasting , but I do find...