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    Jen Brea tweets about U.K. Unrest campaign

    Looking at Twitter, it seems Jen is basing her assumptions on the difference between UK and US TVOD monies. ( Tranactional video on demand, I think) It seems they have equal figures for everything apart from TVOD. (This is surprising in itself, and would suggest UK is a lot more tuned in than...
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    Jen Brea tweets about U.K. Unrest campaign

    I think it's fair to say people with an interest in ME would have watched it, however to suggest all of those would have paid to watch it is a big stretch. Plenty of people watch pirated movies all the time, there is no way all of these people would pay to watch the same movies if they didn't...
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    PACE trial TSC and TMG minutes released

    I don't follow this. The question is what is the norm for clinical trials. How many clinical trial experts would argue that PACE met the standard required? How many scientists in general, would even argue that there can be different levels of evidence required? Either the bar is met or it...
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    PACE trial TSC and TMG minutes released

    That's just Simon Wessely all over, isn't it.
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    United Kingdom: Science Media Centre (including Fiona Fox)

    Don't forget personal profit or gain. Simon had a lot to gain from those press briefings.
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    BBC: Chronic fatigue trial results 'not robust', new study says

    Where would we be without Mr. Vogt for some unbiased impartial commentary.
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    BBC: Chronic fatigue trial results 'not robust', new study says

    Why is it, as soon as Penelope Keith gets a mention, I think it sounds amazing. Still smiling at the thought.
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    United Kingdom: Science Media Centre (including Fiona Fox)

    This is a great idea. I wonder if we should / could up the figure to get more publicity. Something akin to this: http://www.wired.co.uk/article/homeopathy-challenge
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    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    From Wikipedia During July 2016, The Canary achieved over 7.5 million page views, ranking 97th in readership among British media organisations, slightly higher than The Spectator and The Economist. The site's publishers, Canary Media, rose 47 spots from 126th in June to 79th in July among the...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    I think we should ask the CDC to repsond to the claim that the reason they removed CBT and GET from their website was due to pressure from activists. Is that how a health agency which is charged with protecting the health security of its nation, works ? I think they would like to know what is...
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    Stem cell transplant 'game changer' for MS patients

    Just thought this might be of interest to some Stem cell transplant 'game changer' for MS patients - http://www.bbc.co.uk/news/health-43435868
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    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I have lost count of how many times I have heard this sort of argument, and I'm a relative newcomer. There is nothing to suggest this time will be any different, other than blind hope. Going on past performance, which is all we have to go on, I don't see how anyone can get enthusiastic about...
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    BACME Meeting 14-15 March

    Yes, the objective data just isn't reliable you see. Whereas the subjective data, well of course that's reliable.
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    Action for ME has joined S4ME

    Is someone listening to us?
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    The CMRC's new biomedical focus and big ambitions (my new blog)

    This sounds a bit fluffy to me, not sure how this level of non- detail made it's way into minutes. Let me know when you get funding Stephen, in the meantime keep your half baked mysterious apparent opportunities to your yourself. I remain sceptical of Holgate.
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    Seeking An Elusive Cure - article on Maureen Hanson and her Collaborative Research Center

    Is anyone else surprised to hear about "post exertional relapse" ? It's new to me and I can't say I prefer it.
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    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    But @Jonathan Edwards only said that it sounded positive :) (with a lot of caveats ) Sorry I don't buy this. If the CMRC want to be effective they should secure funding for good quality biomedical research. It doesn't have to be a MEGA pie with everyone getting a slice, it can be anyone...
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    Review article: Does the microbiome and virome contribute to myalgic encephalomyelitis/chronic fatigue syndrome?, 2018, Newberry et al

    I had the same thought when I read about Jackson Labs on this thread. I know it's an area Maureen Hanson is also interested in. Seems to be a lot of research on the microbiome but is it warranted?
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    #OMFScienceWednesday - collection of the posts

    In fairness to Dr. Davis maybe it is a priority, we don't know what constraints he has. 10 seems small alright bit it isn't clear which technology they are talking about, they mention both the nanoneedle and the magnetic levitation device. Also I would say the focus would be in understanding...
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    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I remain very sceptical of this. I don't think Holgate can replace the deputy chair and add the word biological to their charter and all of a sudden everything changes. Holgate should resign. He presided over this mess, it was his big tent, which had exclusive access to some and no access to...
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