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  1. Art Vandelay

    Open (Melbourne, Australia): Baker Institute - Understanding exertional and orthostatic intolerance

    The Baker Institute copped a lot of criticism after the announcement of a trial of GET for Long Covid: Long COVID study tests using exercise to overcome symptoms (S4ME thread here) I get the impression that Emerge has tried to educate them about PEM since then. Whether this study is a...
  2. Art Vandelay

    News from Australia

    https://www.abc.net.au/news/2024-08-23/pots-cases-are-on-the-rise-but-diagnosis-is-slow/104064426
  3. Art Vandelay

    News from Australia

    The government has announced the Medical Research Future Fund (MRFF) grant recipients. A list of projects relevant to Long Covid has been posted on Reddit here. Unfortunately one of them includes this from Paul Glasziou: No doubt unblinded trials with subjective outcomes of exercise and CBT...
  4. Art Vandelay

    The Conversation: Success in treating persistent pain now offers hope for those with Long COVID

    It's interesting that the Conversation isn't allowing comments on this article. Some have left critical comments on the associated Facebook post instead:
  5. Art Vandelay

    News from Australia

    While there's some problematic stuff about exercise and rehab (mainly from Todd Davenport), there's a good section on the harmful Australian guidelines: The journalist is on X:
  6. Art Vandelay

    'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths]

    Not only that, according to this post: "she makes money by charging £250 to people wanting to sell their "coaching programmes"" The fact that her many of her videos are paid promotions makes this study look like an even bigger load of nonsense.
  7. Art Vandelay

    Australia: RACGP: GET for CFS

    Update from Emerge: https://www.emerge.org.au/news/racgp-handi-guide-exercise-for-me-cfs/
  8. Art Vandelay

    News from Australia

  9. Art Vandelay

    News from Australia

    A sympathetic article about severe ME and the lack of support and research funding in Australia: His mother is apparently a tenacious advocate. She managed to get a story published a year ago when bushfires hit their farm and they were unable to move their son due to his severity.
  10. Art Vandelay

    News from Australia

    The ABC's Norman Swan commented on this issue yesterday: Why it might be too early to stop saying long-COVID (I haven't got the cognitive capacity to listen to it, however some people have said that it's not nearly as ignorant and offensive as Swan's usual contributions on Long Covid and...
  11. Art Vandelay

    News from Australia

    Who can forget this:
  12. Art Vandelay

    News from Australia

    Another example here: https://www.s4me.info/threads/australia-long-covid-living-evidence-summary.36327/
  13. Art Vandelay

    Who is Simon Wessely?

    While I remember, my Grandfather told me that his Uncle was gassed during WWI and suffered from long term health problems following this event. As a consequence, he was not permitted to resume his job as a miner after the war. Instead he spent much of the rest of his working life travelling...
  14. Art Vandelay

    Who is Simon Wessely?

    I was unaware of this paper from Wessely and I can't see it elsewhere on the forum. It just demonstrates he's always capable of plumbing new depths:
  15. Art Vandelay

    Functional Neurological Disorder (FND) - articles, social media and discussion

    An excellent thread from Dr Mark Guthridge on the first patient diagnosed with "Hysteria": Thread. Medical Hysteria and #InternationalWomensDay In 1882, Anna O is considered 'patient zero' for the diagnosis of "Hysteria" #Hysteria was originally a diagnosis only given to women Anna O fell ill...
  16. Art Vandelay

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I don't think this blog post from Hillary Johnson has been posted on the forum before? It seems relevant here: Can A Leopard Change its Spots? ME and the NIH In 2016, just as the NIH was gearing up for its first ME study in decades, Hillary Johnson talked to pop historian and ME-denier...
  17. Art Vandelay

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    The Australian Government has finally responded to the recommendations made by the parliamentary inquiry into Long COVID. Recommendation 8 from the Inquiry was about ME/CFS: The government's response to Recommendation 8: As has been pointed out on social media, the response is basically to...
  18. Art Vandelay

    News from Australia

    This is a discussion on ME/CFS on Melbourne's RRR radio with sufferer Eliza Charley (she's fairly active on Twitter). Direct link: https://www.rrr.org.au/shared/broadcast-episode/27402/1053000/2775000 I've only managed to listen to the first few minutes, but she speaks well.
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