The Baker Institute copped a lot of criticism after the announcement of a trial of GET for Long Covid:
Long COVID study tests using exercise to overcome symptoms
(S4ME thread here)
I get the impression that Emerge has tried to educate them about PEM since then.
Whether this study is a...
The government has announced the Medical Research Future Fund (MRFF) grant recipients. A list of projects relevant to Long Covid has been posted on Reddit here.
Unfortunately one of them includes this from Paul Glasziou:
No doubt unblinded trials with subjective outcomes of exercise and CBT...
It's interesting that the Conversation isn't allowing comments on this article. Some have left critical comments on the associated Facebook post instead:
While there's some problematic stuff about exercise and rehab (mainly from Todd Davenport), there's a good section on the harmful Australian guidelines:
The journalist is on X:
Not only that, according to this post: "she makes money by charging £250 to people wanting to sell their "coaching programmes""
The fact that her many of her videos are paid promotions makes this study look like an even bigger load of nonsense.
A sympathetic article about severe ME and the lack of support and research funding in Australia:
His mother is apparently a tenacious advocate. She managed to get a story published a year ago when bushfires hit their farm and they were unable to move their son due to his severity.
The ABC's Norman Swan commented on this issue yesterday:
Why it might be too early to stop saying long-COVID
(I haven't got the cognitive capacity to listen to it, however some people have said that it's not nearly as ignorant and offensive as Swan's usual contributions on Long Covid and...
While I remember, my Grandfather told me that his Uncle was gassed during WWI and suffered from long term health problems following this event.
As a consequence, he was not permitted to resume his job as a miner after the war. Instead he spent much of the rest of his working life travelling...
An excellent thread from Dr Mark Guthridge on the first patient diagnosed with "Hysteria":
Thread. Medical Hysteria and #InternationalWomensDay In 1882, Anna O is considered 'patient zero' for the diagnosis of "Hysteria" #Hysteria was originally a diagnosis only given to women Anna O fell ill...
I don't think this blog post from Hillary Johnson has been posted on the forum before? It seems relevant here:
Can A Leopard Change its Spots? ME and the NIH
In 2016, just as the NIH was gearing up for its first ME study in decades, Hillary Johnson talked to pop historian and ME-denier...
The Australian Government has finally responded to the recommendations made by the parliamentary inquiry into Long COVID.
Recommendation 8 from the Inquiry was about ME/CFS:
The government's response to Recommendation 8:
As has been pointed out on social media, the response is basically to...
This is a discussion on ME/CFS on Melbourne's RRR radio with sufferer Eliza Charley (she's fairly active on Twitter).
Direct link: https://www.rrr.org.au/shared/broadcast-episode/27402/1053000/2775000
I've only managed to listen to the first few minutes, but she speaks well.
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