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My mom-in-law over the weekend found an article that suggested the 0.6(220-age) formula was out-of-date, and that the current guideline was to add 15 points to one's resting heart rate. I'll ask her if she can give me the article citation for that.

One further question (or maybe saying differently what I was trying to articulate above): when one is in PEM, can one's symptoms not be tied to HR increase at all? Rehashing hopefully more succinctly what I've been trying to say. What I'm trying to figure out, and perhaps I can't without more...

Of course you are right, Trish, and it did occur to me after I'd written that that each individual with ME will have a different baseline HR and threshold for what triggers PEM. I think I am just grasping for some way of figuring out how to better pace myself, and I was really hoping a...

Thank you, SNT. It sounds like the relationship between HR and activity with ME is more complex than I'd thought (but why did I think something health-related wouldn't be complex??). What you say about the monitor devices vis-a-vis security makes sense also, from what I know of Apple, although...

Thanks, Hutan. I'll look into this.

Wow, 120?! Even when I was working out hard several years ago (yes, in hindsight a very bad idea, but at the time I thought everything was still due to my JRA, and my doctors all told me how important it was to get exercise and be fit), I had trouble getting my HR up to 120. I think I only got...

I didn't know there were phone apps for HR measuring without a wearable device. How does that work? And do I need to worry about third party getting my data? Like Trish, I'm not so concerned about this, but my husband is, and I do know that in the US insurance companies will use any sign of...

My husband, a computer whiz who has always been very concerned about the surveillance state (and data collection by private entities), is really worried about my having a wearable device that would be sending data to someone besides myself. I'm guessing if I use a device that doesn't require a...

This is super helpful, Trish--both your description of how you're able to use a Fitbit w/o alarm to monitor your HR and adapt your activity level, and also your observance that some things that aggravate symptoms (like seated mental activity) may not increase HR, and this doesn't mean that HR...

Thanks for putting this in the correct thread, monitors!

I was looking at this, too, but it didn't look like it had an alarm like what @Wonko described with the Vivoactive 3, which is more than I want to spend at this point until I know whether HR monitoring will even help me. I don't know, for example, whether I am someone whose heart rate increases...

Merged Android HR monitor with alarm Forgive me if this has already been asked/answered, but can anyone recommend a wrist heart rate monitor with an alarm one can set if one's HR goes above a certain number? Thanks.

Oh of course! I'd forgotten about Mayo's importance. In fact, one of my childhood friends who now lives in NY returned to Mayo to get her diagnosis. Thanks for the link and the doctor's name!

Yay for my home (original) state of MN. They don't get everything right, but I was surprised to hear they even have an ME/CFS clinic.

Moderators, please move this if it belongs somewhere else, or let me know if it's already been cited/posted (I've been away too long): https://www.thenation.com/article/society/long-covid-disability-policy/ There may be a paywall; if so, I can try a different way of posting it.

Yeah, sorry I didn't notice the date. A family member who reads Sci Am sent it to me, so I assumed it was a recent piece.

https://www.scientificamerican.com/article/covid-long-haulers-are-calling-attention-to-chronic-illnesses/ Nothing new here, and some of you may disagree with some of what she says about illnesses like long Covid and ME, but another sign that long Covid is allowing illnesses like ME to get more...

Thanks, Shak8! Hope this is a good day for you--and for everyone here, recognizing that "good" is a qualified description for all of us.

Dumb question: what is PVFS?

Thanks for posting this, Ash. I was about to post the same thing, as I too am looking into getting something that can provide bio measures, esp vis-a-vis HR and HRV. I am completely Linux/Android. Any of you have suggestions for me that aren't too expensive? Thank you !