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Piecing together all the bits of information, it appears that funding of biomedial research will be announced and that Alain Moreau will play a role.

Their assumption is that it's a behavioural problem (low activity levels), and that changing behaviour (higher activity levels) means having successfully treated the patient. This sort of analysis is just too simplistic. Being able to increase activity levels is no good when it soon leads to a...

I often think that I have some sort of inflammation going on, in different body parts. It feels like mild inflammation at least. Maybe it's not the c-reactive protein kind of inflammation. Something is happening there but it's not clear what. Is there a list of processes that feel like...

So what does it say about CFS?

He could just hire someone to pose as patient that made a dramatic recovery. Even if the testimonial is real, the claims aren't supported by reliable evidence. Similar claims led to the advertisment standards agency to intervene. Parker is probably hoping that on Youtube he can get a free pass.

No, ME/CFS patients aren't in constant fight or flight mode. Hypersensitivty or sensory problems aren't the same thing as fight or flight mode. Even when I had marked POTS and tachycardia I wouldn't describe it as fight or flight mode despite the same stress hormones being involved. The body is...

Also report the video for fraudulent content.

I fear that as usual the problems with psychotherapy trials will be overlooked despite being obvious. I doubt that they would be overlooked if the treatment was homeopathy or traditional chinese medicine.

The purpose was to test the hypothesis of viral reactivation during PEM. There are patients who say this happens to them. Also patients who say they are infected with some virus. I think it's good that researchers are listening to patients and testing these ideas.

What does not a simple Mendelian issue mean?

From another comment: An applause for Dr Hanson!

I've read some responses and the usual themes reappear. I liked this comment. And this one There are many good comments.

That is a good point. I overlooked reason 3. A study that can specifically find enterovirus in the brain would be useful.

Moderator note: This post and following posts have been moved from this thread: Dr Byron Hyde surrenders his medical license I'm just going to leave this here: Whole blood human transcriptome and virome analysis of ME/CFS patients experiencing post-exertional malaise following...

Perhaps a reason for a lack of scientific progress is some of the "specialists" and their weird ideas. I think that is easy to see in the case of the CBT/GET proponents, who are the most successful and have influenced public perception, textbooks and guidelines (it's easy to see because their...

He held the view that ME is a "biphasic epidemic and sporadic enteroviral infectious disease". This info can be found on websites frequented by patients http://www.me-foreningen.info/2017/05/04/baron-hyde-what-is-myalgic-encephalomyelitis/ He also held the view that ME is not CFS and describes...

To me the main problems seem: Charging patient A a lot of money (presumably this wasn't the only instance of such behaviour, but merely an instance that resulted in a complaint to the college of physicians). It seems wrong that an employer would prescribe medication and give psychotherapy to...

There is a darker side to the ME/CFS specialists, in that they sometimes go down a path of creating a narrative of the illness that is too complex for most doctors to understand and treat. This suits their commercial interests as they can charge more when there are fewer doctors with which to...

Dr Byron Hyde surrenders his medical license https://doctors.cpso.on.ca/DoctorDetails/Byron-Marshall-Hyde/0016579-21364

I read that Brexit will prevent scientists from accessing the €100 billion Horizon Europe research fund. Currently there is almost no EU funding for ME/CFS but that could change.