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I am concerned with this contradiction: her paper, and then these statements. I don't think she doesn't know enough about the ICD process because she's involved.

What puzzles me: Doesn't Leonard Jason have ME, too? I thought I read it somewhere. Shouldn't he know PEM if yes?

That's a good one. But I remember that iron deficiency tiredness is closer to feeling "worn-out" (I hope that's the correct word...), no? I confess I tend/tended to go to the doctor only if I really felt terrible or someone told me it would be better to go. That's maybe not the best thing to...

At least in Germany there would be no people left for research if people with psychiatric (mis)diagnoses are excluded. I would say nearly everyone here got a psych diagnosis at some point or the other before getting an ME diagnosis. I think this is what you meant, @Webdog?

Is this true? I read it so often. But myself, I never went to a doctor because of tiredness - I never would have thought about it. Did someone here? (On the other hand, I couldn't work anymore because I felt like if I went on I would crack due to a heavy exhaustion and pain and feeling worse...

But this can be made up. Not such a bad idea though, @adambeyoncelowe; for people who have no other choice (and who are informed), pretending might be an option (-> self-defense). Of course it's not a long-term solution.

This reminds me of the witch scene in Monty Python. The villagers bring a woman to their lord and call her a witch - she's dressed as witch, so she must be a witch. Although it's obvious the long nose is a false nose (a carrot?) - and the lord verifies this easily - and although the villagers...

@Snow Leopard, thank you for linking this article - it is superb. I like the combination of art and the explanation what is meant. I also love the poem at the end: Edit: @Arnie Pye was faster :)

Now they justify sexism and racism with "studies". (I cannot find a good reason why women, younger persons and non-native speakers more often have "MUS" - unless of course that's the group of persons where the fewest diagnostics are performed per se due to prejudice.) 2/3 practically says...

Oh gosh :( it's an old interview?

Come on, we know that. But if it leads to substantial worsening, what should you do? Oh man...

In Germany, it's 0. It really seems the bigger part of hope for ME research lies in the US. Thanks @Simon M.

I know someone who got a stem cell transplantation end of last year, and I have to say I was never sure he would survive. Some 'neighbors' of his died due to common infections. He made it, but it's certainly nothing easy.

I like these graphs - very well done, very clear and concise.

@Pechius, I agree with you. I would love to see your contributions in the thread @Snowdrop linked to (or any such thread).

It should be common knowledge (at least amongst athletes it is) never to train during an infection, especially not during the flu! It is well-known that the possibility of having a myocarditis is relatively high.

It's just incredible what you do for people with ME. Thank you!

I sincerely hope he will be right! He said he may be able to say more by this summer - that would be absolutely unbelievable. Let's see.

Those people are picked who aren't "performers" (in German Leistungsträger), i.e. people who - no matter why - don't contribute in any way to BIP and who ask for social benefits. This would include criminals. You can be the biggest weirdo with the most questionable way of thinking, if you earn...

He's just saying how it is (in my view) :) I like it. Thanks for your analysis, @Samuel. Obviously, Francis Collins looks for excuses.