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I'm struggling to read long stuff at the moment but I couldn't see anything in the article that really explained how they were going to do things differently.

Personal experience is a powerful thing. People don't think in statistical terms. (That's what we're here for.)

That's incredible - I'm so pleased to see him so much better.

You're right, I haven't! :) That's great - when is it coming out?

Who/what is Adam?

Spot on, and funny, too!

Although a neurologist helpfully explained to me, talking about a different condition, 'Functional - by which I mean, "all in your head".'

Do you think we're getting any nearer to being assigned to a particular specialism?

We may have talked about this before, but what will be the trigger for getting us put into a particular speciality? Formally published DecodeME results? A positive dara trial? Something else?

Is part of the problem that we don't belong to a particular discipline? For example, we're not in rheumatology so we can't get normal rheumatology care? Scary.

Do we have any idea how many patients have already been enrolled and have begun treatment?

Does this actually present an opportunity - namely, to use ME/CFS set a new standard? (Serious question.)

This is a crucial statement and it's amazing that it needs to be pointed out. My impression is that people have reconceptualised ME/CFS as a temporary state simply in order to be able to apply rehabilitation to it.

I haven't read the guide yet because it's 35 pages long. QED.

Generally, the more you say, the less people read, and the easier it is for them to focus on minor points and dodge the big ones. I favour documents that are as short as possible, in general. But I haven't even read the guide, yet.

:thumbup: :thumbup: :thumbup: :thumbup: :thumbup: :thumbup: :thumbup: :thumbup: :thumbup: :thumbup: :thumbup: :thumbup::thumbup: Run out of thumbs. We've needed a paper like this forever.

Let's hope we can help unstitch it!

I'm worried about that too.

I also had a look at studies on transdermal absorption when I was initially looking into this and IIRC there were quite a lot of contradictory ones but in the end I landed on it sounding as though there was reasonable absorption particularly if the concentration of Mg in the water is high, and...

But they tell you they think people who say they have ME are deluded but people who say they have CFS aren't? This is a big surprise to me, but of course no one is ever going to say this kind of stuff to our faces (apart from doctors).