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  1. Mij

    Vestibular issues

    omg . . . A damaged vestibular system depletes energy because the brain has to sort and interpret many false messages about spatial orientation, muscles must work vigilantly to help maintain balance, more effort is required to keep the vision focused, and a person must work harder in order to...
  2. Mij

    Vestibular issues

    Split from this thread. @Forbin I was reading up on vestibular exhaustion. Interesting how managing it is similar to PEM avoidance. "If you have a chronic vestibular disorder, you probably struggle with fatigue that may rob you of your spontaneity. When you’re feeling well, you may...
  3. Mij

    Andy's attempt to create a reasonable descriptive model of ME.

    @Andy found this After Exercise After you stop exercising, the rate at which your body produces heat decreases, while the mechanisms you use to dissipate heat remain in operation until your core temperature returns to its normal level. Your core temperature doesn't drop below normal levels...
  4. Mij

    Andy's attempt to create a reasonable descriptive model of ME.

    "Producing heat is part of the mitochondria's role in the center of metabolism activity," Sinha said. "It needs to produce the energy currency that's used for the activities in the cell, and heat is one of the byproducts, in most cases. But there is a mechanism that can ramp this process up to...
  5. Mij

    Andy's attempt to create a reasonable descriptive model of ME.

    I received an interesting article on my Twitter feed regarding measuring temperature inside of a cell. I have taken my temperature (for one month) years ago during PEM (day after exercising) to give my functional doctor and found that my body temperature dropped to 95.5 F every time. Not...
  6. Mij

    "For patients having a Multiple Sclerosis relapse, vaccination should be delayed until the relapse is no longer active"

    I was vaccinated (tetanus, rubella, x2 Hep B) for a course I was taking just one month after sudden viral onset :( It was after the second Hep B shot that my energy/stamina and head in a fish bowl sensation began.
  7. Mij

    US NIH: Responses to NANDS Request for Information: How to advance ME/CFS Research

    Years ago I travelled for 2hrs in the car (as a passenger) and literally couldn't lift my arms for the next 2 days. The motion and rapid eye movements exhausted me.
  8. Mij

    Canadian Federal Health Minister to make announcement regarding ME, August 22

    @Forbin do your symptoms occur during PEM or all the time?
  9. Mij

    Canadian Federal Health Minister to make announcement regarding ME, August 22

    To add, I'm personally not a fan of the term brain fog or 'mental fogginess', I don't think it's a good description of what is occuring. I don't feel foggy, I feel brain sick.
  10. Mij

    Canadian Federal Health Minister to make announcement regarding ME, August 22

    Transcript from OMF here : "I put up the first pie chart is the group one, the last one is group 4. And you see looking about a factor called thrombospondin-1 which is an anti-angiogenic factor. So TSP-1 is more elevated after the stimulation in group one. And it could contribute to a kind of...
  11. Mij

    Canadian Federal Health Minister to make announcement regarding ME, August 22

    I can't find where he mentions over trained athletes. In this video he discusses specific sub-types and where the 'fun happens'. He mentions sub type 1 who experience vertigo which I find interesting.
  12. Mij

    Canadian Federal Health Minister to make announcement regarding ME, August 22

    @Jonathan Edwards I'm not certain what he's referring to, but he did a study that found a 'molecular signature' high in homocysteine in his severely affected patients. I've read that endurance exercise induces an increase in homocysteine depending on intensity? Will have to look it up...
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