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I didn't experience PEM during the first 5 months of the vial phase after onset, but what I did experience was pure flatness after a run, zero high or indication that I even exercised. It was very odd.

The ME doctor I saw in 1992 told me that we won't return to our previous baseline everytime we relapse from unproven treatments. This was my experience years ago.

I've been taking vitamin K2 MK-7 (from Natto) for almost 2 years, it has greater bioavailability than MK-4. I would have liked to have had a bone scan before and after to see if my bones are stronger.

Magnesium assists in the activation of vitamin D. Once I increased Mg levels through injections, my vitamin D went up without supplementing.

I don't have issues wearing a double lined cotton mask. The discomfort is when I have to talk, and my mouth sucks in the cloth and I start feeling a bit hot or my oxygen is limited.

@chrisb What causes abnormal sense of taste and smell? The most common causes of smell disorders are nasal and/or sinus disease, viral upper respiratory infections, and head trauma. The most common causes of taste disorders are upper respiratory tract infections and head injuries. Other...

Possibly for upper respiratory infection sinus type viruses or bacterial infections?

Just saying "I'm feeling better today" to your GP or family member is dangerous. They want you to get better, and will hang on to that everytime they see you thereafter. Recently a couple of Canadian news outlet infectious disease doctors were suggesting that post-COVID syndrome could lead...

https://www.jwatch.org/na51986/2020/07/20/characterizing-cognitive-impairment-patients-recovered

My only concern is that post COVID syndrome and ME will muddle PEM with fatigue exertion. I would like PEM to stay distinctive until we have a biomarker. I continue to have viral re-activations and experience symptoms to PEM, but they are not the same.

Are you referring to cognitive PEM?

@Wonko The feeling of being off-balance/swaying is the first sign for me that my body needs to stop and rest since day one.

The study explained that older kids are more likely to spread the coronavirus at a greater rate partly because of their height. Younger children are more likely to exhale less air and exhale closer to the ground where there are fewer people to infect, according to the study. :confused...

Pacing requires a lot of discipline and planning ahead. It will be difficult for ppl who are new to this to understand until it affects them negatively over time. An ME specialist advised me to pace decades ago, and it went right out the window as soon as I left his office.

The unintended surgery cancellations has caused hundreds of Canadian cardiac and cancer patients deaths after waiting for treatments/surgeries at hospitals because of COVID. The huge backlog for years to come is unimaginable.

@Midnattsol I hope you have another remission too! :) I have never had one, it doesn't matter how good I feel or how much rest, PEM is always there if I go over.

@rvallee I don't think excessive rest before the test would skew things. The pathophysiology is there no matter how much we rest. I can rest for 3 months, but PEM will set in as soon as I go over my energy window Rest does not alleviate PEM either, time does.

I've read contradictory reports on this issue, but from my experience is that it does thin my blood. https://pubmed.ncbi.nlm.nih.gov/28552094/

Anyone taking fish oils regularly might have issues with bleeding. This is the case for me when they draw blood.

Those of us who don't experience too many symptoms have to got by decades of experience, trials and error. In the last 8 years I've decided to reduce my 'energy envelope' just a little more in case I'm overdoing, even without PEM.