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There's just been an interview of Professor Lisa Sanders, of Diagnosis fame, who is now running the Yale Long Covid Clinic. Sunday 17 September Radio New Zealand - If I remember, I'll add a better link when it is up...

I assume the improved cost effectiveness is due to the lower number of sessions: In which case, the logical thing to do would be to see what happens if the number of sessions is reduced further... and further. Actually I can imagine this sort of treatment (the CBT and/or ADepT) being useful...

I'm curious why you are sceptical about the inclusion of Long Covid in the scope of an ME/CFS charity. For me, including it is warranted on both moral and self-preservation grounds. If Long Covid is excluded, then it's hard to see how an ME/CFS charity could survive in the medium term, as most...

Sounds fantastic, what a great resource

Singapore National Centre for Infectious Diseases, reproducing content from two Straits Times 2022 articles Hit by Long Covid Gives a list of clinics providing services. The information about Long Covid is a mix of good advice, graded exercise therapy and commercial exploitation of the...

On baricitinib for Long Covid:

Those references that are given to support the claim that 'excessive infiltration and accumulation of profibrotic monocyte derived macrophages have been reported in ..PASC'? 12. Phetsouphanh C, Darley DR, Wilson DB, Howe A, Munier CML, Patel SK, et al. Immunological dysfunction persists for 8...

What I like about this idea in terms of it being useful for thinking about ME/CFS is that it is the process of healing following infection-induced injury that causes the harm. From the discussion: The authors mention two drugs that they think could stop the pathological process they have set...

I haven't looked at the figures, but my impression is that these researchers did a lot of work, checking their assumptions in several ways. It seems like good work that should move the understanding of post-infectious lung fibrosis forward. I think it might possibly have some relevance to...

Analysis of gene expression seemed to point to highly active inflammatory responses in the areas of dysfunctional repair. There were a whole range of immune cells active in the areas of dysfunctional repair, including macrophages. A CD8+ T cell-macrophage axis induces IL-1β release to arrest...

They seem to be suggesting that increased levels of CD8+ T cells and areas where the tissue repair wasn't happening properly was a feature of post-viral pulmonary fibrosis. The researchers tried to recreate this situation in mice by exposing them to a SARS-CoV-2 but they couldn't. However...

Mostly University of Virginia work This paper is about 'respiratory PASC'. They appear to be suggesting that the compromise to lung function can last a long time whereas PASC impacts elsewhere do not. Despite the paper being focused on lungs, maybe it can tell us something about Long covid...

Solve M.E. Welcomes Chief Scientific Officer, H. Timothy Hsiao, Ph.D. Solve M.E. is pleased to announce that H. Timothy Hsiao, Ph.D. recently joined us as Chief Scientific Officer, Head of Research Strategy and Alliances. In this role, Tim will create a roadmap for advancing translational...

Added, thanks

They found more depression and anxiety in the NeuroPASC cohort, but it's worth noting that these patients are being assessed 6 months into their illness, so they won't have had time to adapt and come to terms with the abrupt negative change in their lives. So, attention was the most affected...

Just worth noting this clinic, may be of interest to people with Long covid. They are doing studies and seem to have people assessed by specialists, so even with just that, they are well ahead of many clinics. They don't appear to assess for PEM though. And also noting the NIH Toolbox for...

Thanks @obeat, added

The Hanson in the author list is Barbara Hanson of North-Western University, Chicago. @DMissa, one in your wheelhouse. From the posted excerpts, it looks interesting. The separations aren't perfect, but I guess there could be quite a bit of daily variation in the levels of the proteins...

Here's the daily increase in signatures. Things are tracking pretty well, there's a steady increase. If you want to check out the organisations that have signed the open letter, have a look here. S4ME: 2023 Open Letter to Cochrane - request for action on the ME/CFS Exercise Therapy Review It...

Here's the report of signatures by country: Country: Name (Count All) As I read that list, I think of the people who are the sole signatories of their country. I hope they have support around them. Top ten countries: UK 1824, Australia 699, US 536, Canada 498, Netherlands 410, Norway 372...