Search results

From wikipedia So, Regeneron, an American company, are the treatment developers and they must have made squillions from it in a very short time. But, the treatment doesn't seem to work against the Omicron variant, so that's a problem, including for Regeneron. Presumably they have the...

So, if I'm understanding things right, the authors of the paper were told about these recoveries. And these three people are the first three they were told about, but there have been others they have been told about since. The authors weren't the ones who administered the treatment, which was...

Yes, thanks @Tom Kindlon for your help with this, it's very much appreciated.

I finally joined twitter today, just to like that tweet. I'm so impressed that this team wanted to understand Long Covid, ME/CFS and POTS and so undertook this large collaboration to look into Raynaud's. And the work was possible because of all the people who have worked on building biodata...

From the caption under the photo in the article: Oh dear. Really sad to see the uninformed witterings of this group getting picked up and spread far and wide, in this case to Malaysia. That said, I think the article will leave an uninformed reader with quite a confused impression and possibly...

Thanks very much @oldtimer. Here's the latest version of the letter, I have removed references to Cathy Stephenson who, while having produced some good materials, may not want to be held up as the go-to expert for ME/CFS. If anyone else sees issues, and I'm sure there are more, maybe send me a...

Thank you very much Deanne and welcome to the forum. For new members, it can take a while for your first posts to show on the forum. Later on, they will show up immediately. That's funny. I guess it would be worse if Arroll was a follower of Parker.

They next looked at the impact on the cells that were made to over-express ADRA2A - they concluded they were contracting more. There's a picture of the theory, but, as far as I can work out, it's pretty simple. People with Raynaud's have more alpha 2a adrenergic receptors on the particular...

The researchers found a number of risk variants for ADRA2A. They suggest that the lead variant affects tibial arteries most, also prostate, brain, small intestine (See. Fig 2 b). They also say that it is expressed primarily in microvasculature. The team applied their tools to work out...

Of course, I have no idea, but the picture does look exciting.

It's quite a collaboration - data from Finland, UK Biobank, Estonian Biobank, Mass General Brigham Biobank. Data from over 1 million people including 11,605 people with RS. Terrific to see that happening. This is progress. :) I think Raynaud's is quite common in people with ME/CFS? I wonder if...

I haven't read this yet, but is peak oxygen consumption just VO2 max? In which case, it's hardly surprising that low VO2max goes with low SF-36 scores. It could just be that people with low SF-36 scores tend to be more unfit than people with high scores. Also, the authors don't seem to be...

A member has reported that Dr Bansal is likely to be retiring around the end of 2024.

Thanks very much for picking up these edits @oldtimer. It's getting better - that was a good pick up on the recovery trajectory comment. I don't know why my spell check etc aren't working.

I wonder how much of this increased incidence can be accounted for by people actually having these disorders before Covid19. Then, in the aftermath of Covid-19, when a lot of people have symptoms like fatigue and aches as well, the person goes to the doctor and they get some screening, and...

Typos etc fixed, letter attached. Thanks Trish and SNT. I probably need to read through it again, but I'm not functioning well this morning.

Bavarian team some excerpts: Accompanied by the damaged nervous system, altered eye movements26,27 and pupil responses28,29 can occur, potentially leading to reduced stereopsis performance. This highlights the importance of visual performance for Post-COVID. We used a Virtual Reality (VR)...

Adipose-derived, autologous mesenchymal stem cell therapy for patients with post-COVID-19 syndrome: an intermediate-size expanded access program, 2023 Paper on this trial.

Thanks Trish. There are 22 footnotes with links so far - maybe they didn't upload? One is to the Norwegian patient website. I wanted to add JE's submission, but hadn't got around to finding it yet. I haven't incorporated the reanalysis of PACE because I say that I'm not really covering...

I have felt rather 'engaged' shall we say, about this. Arroll promoting the Lightning Process, the terrible Medcase recommending the Lightning Process, and Luke Bradford's superficial response. I think Bradford may not be a lost cause, we just need to help him understand e.g. to get beyond an...