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Oh, the irony. The labelling of many people with 'health anxiety' is surely partly the result of doctors feeling uncomfortable with a situation where they can't otherwise identify a cause of the patient's symptoms. Feeling that they must know everything and always get things right, 'health...

The mismatch on BMI could definitely be an issue: The complement system is dysfunctional in metabolic disease: Evidences in plasma and adipose tissue from obese and insulin resistant subjects, 2019, Moreno-Navarette et al For example the Factor D finding could have been affected by the...

Figure 5 is a correlogram. 5a is for all of the substances tested, for the controls, and 5b is for the cases. (I don't understand why these two correlograms weren't combined - what is the point of duplicating the same data above and below the diagonal line? I mean, you could put the case data...

Yes, good sample size, healthy controls had also had Covid-19. Figure 1 - Dot plots for the 6 complement activation products, plasma concentrations. Overlaps, but some great P values. Long covid on the left. They investigated levels of complement components and regulators too, and again...

This sounds interesting. It's too late in the day for me to read it today, but I look forward to hearing more e.g. sample size, how the individual complement proteins compared, whether any of the findings have also been found in ME/CFS.

I'm not sure that it does prove that harm to patients is intended. I think many health professionals involved in this truly believe that they are helping these inadequate people with their low self-efficacy to become better versions of themselves and recover. The fact that providing this...

Almost as if humans had evolved to live in an environment with natural sunlight... I'm not sure if our problem is ROS and/or things to do with NO, but there are hints that both are affected by sunlight. I think a study of people with severe ME/CFS - providing exposure to morning sun or an...

We have this thread, which has the two organisations that DokaGirl mentioned and a couple of others: ME/CFS and Long Covid charities/ organisations - International and National There's a link there to a thread with Canadian regional organisations.

This problem alone invalidates the study. People who are willing to bear the label 'Functional Disorder' are much more likely to buy into the idea of past trauma being responsible for their current physical health. If you have persistent symptoms and you've had a fairly trouble-free life, you...

Thank you @Suffolkres, great news. I'll add LocalME to both our UK national and regional organisations list, and we'll also add LocalME to the open letter supporter list. How great that 52 small organisations are so well organised, and that the UK has the 52 organisations.

As Andy said, the treatment is pretty much CBT and GET. I think, there have been a lot of BPS trials, perhaps even most, where it is not made clear to the participants that such treatments are aiming to correct psychosomaticism. It would be great to get hold of the information pack and hear...

Oh that sounds sad. I think a lot of us would identify with coming to a point where we have to let go of our past profession and the aspirations and plans we had tied to that. For those with expensive annual practising certificates and other professional requirements, I imagine that point is...

Version of a comment posted in response to Dave's article. The paper said:”Due to our selection procedure we may have included patients who did not always expect a psychosomatic approach.” @dave30th said: “Are the investigators suggesting that participants were too stupid to read or understand...

Welcome to the forum @Long Covid SOS! It's great to have you here. Certainly, adding you now. Done

Chris Armstrong Chris had a bar across the bottom of his slides with the 'chapters' of his talk. And the appropriate chapter title highlighted when he was speaking to it. I thought that was a very nice innovation. Anyway. The Introduction section covered what metabolomics is and can be...

I note for the future seminars in the ME/CFS Research Roadmap webinars that these are 4 hours long. I woke up 30 minutes late and thought I wouldn't bother thinking it was just an hour, but then had a look 2 hours in and realised there was still plenty to hear. These are good seminars I think...

A reminder for the metabolism talk coming up a bit later

Great tweet @Andy, thank you.

See also The alpha-2A-adrenergic receptor (ADRA2A) modulates susceptibility to Raynaud's syndrome 2023 Tervi et al Interesting stuff. There's movement away from regarding Raynaud's as just a response to cold and emotional stress. Low blood sugar could be causing attacks. That makes sense, as...

This thread is for a list of sub-national Norway ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Norwegian ME-association Austagder -- aust-agder@me-foreningen.no Norwegian ME-association...