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  1. mango

    News from Scandinavia

    Stora Sköndal to temporarily stop accepting new patients Less than a month ago Stora Sköndal ME/CFS Center in Stockholm, Sweden, filed a request to temporarily stop accepting new patients. The reason given is that their waitlist has been growing uncontrollably lately, because of all the...
  2. mango

    Bragée ME/CFS-Center in Sweden is (probably) closing

    Bragée ME/CFS-Center in Stockholm, Sweden, is (probably) closing. They gave official notice of termination of their agreement with Stockholm County Council in the beginning of March, which means that they will be closing in September unless Stockholm County Council changes their mind and agrees...
  3. mango

    New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for ME/CFS, underway, Karolinska University

    Sorry! Thanks for letting me know. They did show up for me earlier today, I'm not sure what changed? I've edited my post now. Are the images showing up now?
  4. mango

    New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for ME/CFS, underway, Karolinska University

    Their application to the ethics review board has a lot of details about the hows and the whys (47 pages, all in Swedish). Here are some excerpts: (Edited to replace image links with uploaded image files.)
  5. mango

    New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for ME/CFS, underway, Karolinska University

    Dr Per Julin, the study director, is one of the very best biomedical ME specialists there are in Sweden, so this is definitely no joke :)
  6. mango

    News from Scandinavia

    Värmlands Folkblad: Dags att synliggöra ME https://www.vf.se/insandare/dags-att-synliggora-me/ Google translate, English ("Time to make ME visible")...
  7. mango

    News from Scandinavia

    And here are a couple of tweets by Helmfrid (thank you!) in response to Reimer's SVT.se opinion piece earlier today:
  8. mango

    News from Scandinavia

    Speaking of Reimer. Sten Helmfrid published this brilliant article last month: Mats Reimers blogg på Dagens Medicin ger en systematiskt missvisande bild av ME/CFS https://www.researchgate.net/publication/323689529_Mats_Reimers_blogg_pa_Dagens_Medicin_ger_en_systematiskt_missvisande_bild_av_MECFS
  9. mango

    News from Scandinavia

    SVT.se: "Inte klarlagt att kroniskt trötthetssyndrom är en fysisk sjukdom" https://www.svt.se/opinion/article17674467.svt "Not determined that ME/CFS is a physical disease" (Google Translate not available) Reimer is one of the most notorious BPS extremists in Sweden.
  10. mango

    News from Scandinavia

    Läkartidningen: "Debatt: Släpp in funktionella neurologiska tillstånd i neurologins finrum" by Carl Sjöström and Anders Lundin. http://www.lakartidningen.se/Opinion/Debatt/2018/01/Slapp-in-funktionella-neurologiska-tillstand-i-neurologins-finrum/ Google Translate, English Journal of the Swedish...
  11. mango

    Leonard Jason wants ME/CFS patients to do a PEM survey

    "This survey will be open until the end of July." according to Leonard Jason's post on Facebook.
  12. mango

    News from Scandinavia

    Uppgång: Inget botemedel finns för Jenny http://www.uppgang.com/nyheter/enkoping/inget-botemedel-finns-for-jenny-4946920.aspx Google Translate, English ("There is no cure for Jenny")...
  13. mango

    Leonard Jason wants ME/CFS patients to do a PEM survey

    Done :) It took me several hours (not including the many long breaks). Very hard work, and I wrote several long comments too. I think it's really great that they are interested in trying to improve the definition and understanding of PEM (super important for so many different reasons!), and...
  14. mango

    News from Scandinavia

  15. mango

    News from Scandinavia

    Aftonbladet: Kronisk trötthet inte bättre av träning https://www.aftonbladet.se/nyheter/a/9mMrRl/kronisk-trotthet-inte-battre-av-traning Google Translate, English ("Chronic Fatigue not improved by exercise")...
  16. mango

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Using capitals to separate words in hashtags is very important for screen readers (apps etc that convert text into synthesized speech) to function properly. Having said that, I agree. The simpler the better :) ETA: Brilliant idea/thread, @Kalliope! Definitely worth a try! I would join in, use...
  17. mango

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Yes, it worked for me.
  18. mango

    Merryn Crofts - media and inquest

    This Swedish article (published today) is based on the UK articles above. Expressen: Mamman vill att alla ska se bilderna på dottern https://www.expressen.se/omtalat/mamman-vill-att-alla-ska-se-bilderna-pa-sin-doende-dotter-/ Google Translate, English ("The mother wants everyone to see the...
  19. mango

    News from Scandinavia

    An article in Sweden today, based on the UK articles about Merryn Croft (s4me thread here) Expressen: Mamman vill att alla ska se bilderna på dottern https://www.expressen.se/omtalat/mamman-vill-att-alla-ska-se-bilderna-pa-sin-doende-dotter-/ Google Translate, English ("The mother wants...
  20. mango

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Donated (wish I had more to give). Thank you so much for all your hard work, @dave30th! Brilliant, and incredibly valuable.
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