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Info to participants: "The study is conducted in conjunction with your regular clinic visits. You will be asked to fill out a "complaint sketch", and a doctor and a physiotherapist will do a simple examination of joint mobility and neurology. The complaints sketch is a method in which the...

"Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and associated conditions and improved handling, investigation and diagnostics (the MED Study)" This project is run by Bo Christer Bertilson at Bragée Clinics in collaboration with Karolinska Institutet (Department of Neurobiology, Care...

Pacegranskaren's latest article is a concise and very helpful summary of the previous articles in the series: Metodologiska och etiska problem i en svensk beteendestudie av ME-sjuka del 5: Sammanfattning Google Translate, English

Yes. Not sure if I would be able to explain it here without saying too much, though...

No, it doesn't have anything to do with Bergquist. It's been brewing much longer than that... This change isn't coming from the scientific advisory board, but from the top of the organisation, the board (what's the name in English? Board of directors?), and follows the recent reorganisation...

Two independent bloggers have published a series of articles on the study on their respective blogs. Brilliant, well worth a read! Pacegranskaren Metodologiska och etiska problem i en svensk beteendestudie av ME-sjuka del 1: Urval Metodologiska och etiska problem i en svensk beteendestudie av...

This trial is still happening. One thing has recently changed: they have sent an application to the Ethical Review Authority asking permission to continue the patient data collection at a different place, Bragée ME-center. Another recent change is that the Swedish patient organisation RME, who...

Well done :) I would warmly recommend transcribe.wreally.com if you're using the "listening and typing" method, it has some super helpful functions. (They recently added auto-transcription for English and a couple of other languages, but I haven't had a chance to try it.)

Twitter thread written by a pwME in Sweden:

SVT: Sjuka Sture Eklund får rätt till sjukpenning: ”Skönt det är klart” https://www.svt.se/nyheter/lokalt/norrbotten/sjuka-sture-eklund-far-ratt-till-sjukpenning-skont-det-ar-klart

Paywalled article in Aftonbladet, Sweden: https://www.aftonbladet.se/halsa/a/Kv4jVy/kroniska-sjukdomen-som-inte-gar-att-vila-bort/promo

Stora Sköndal ME/CFS Center in Stockholm, Sweden: http://www.storaskondal.se/vara-verksamheter/neurologisk_rehabilitering/mecfs-mottagning/

There are many blog posts on DxRevisionWatch that go into details about the differences between them and where they overlap. For example: https://dxrevisionwatch.com/2018/07/21/comparison-of-ssd-bdd-bds-bss-in-classification-systems/...

In Sweden there's a concept called "vårdskada" (literally "care harm"). Is there an equivalent in other countries? The definition of "vårdskada" according to the patient safety law (Patientsäkerhetslagen 2010:659) is, roughly translated: "suffering, bodily or mental harm or illness and death...

The editor made the correction when he spotted the error. I don't know if they have informed Bragée about it.

:whistle:

Could have been funny :) But sadly that's not at all the signals I'm getting re: the national guidelines projects etc (most of them seem to rely heavily on the Cochrane reports) here in Sweden... :(

@Kalliope Apparently the Dagens Medicin article has been updated now, to correct the bit about PACE. Could you please check again, see what it says now?

@Kalliope Thank you so much! :hug: Dr Bragée is a very controversial character, used to be a tv celebrity, he's new to ME/CFS, likes to promote bps while at the same time claiming that his approach to ME is biomed, and it seems to me like he's still not up to speed knowledgewise --...

There's an article in Dagens Medicin (Sweden) today, about the Cochrane issue it seems, but it's paywalled. (They suddenly started paywalling yesterday,... including some articles that were previously free to read.) Anyone here have access...