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Bolding mine. Lovely. So when the establishment has stuck a mental health label on us all, they can then prevent us from participating from attending events. Instead of posturing about how people want to avoid being labelled as mentally ill because of the stigma, you should try and do...

Music therapy torture as a treatment? Has he ever met any sound sensitive ME patients? Edited - I loved music. Can't sing or play a note myself, but always had music playing. Now I can rarely bear it. When I do occasionally give it a go I have to be really careful as it can fire me up too...

I have recently received my order of Jarrow N-Acetyl-L-Cysteine 600mg sustained release tablets. I am mainly hoping they will improve sleep and help stop the old wired, but tired kind of feeling. I know some take one tablet 3 times per day: am, afternoon and evening. The instructions on the...

Puberty is another issue that might impact recovery. Some menopausal women find that the hormone fluctuations can make symptoms worse and their ME even less predictable. I know hormones can make it very difficult for young femaie insulin dependent patients to manage and keep the condirion...

I would have a serious issue.... I love figuring out how things work and taking them apart. I still remember Cindy-gate when I dismantled my sister's doll because I wanted to know how they got her arms to bend (elastic internally in the joint). Turns out my ability at reassembling wasn't...

This one can be great fun when trying to use cutlery! Especially, in polite company. I have accidentally jabbed myself in the face with a fork on more than one occasion.

Pardon, if you have mentioned it somewhere @Dx Revision Watch , but is Dr O'Leary advising @Action for M.E. in their approach to WHO this month? Beyond them both being members of the Forward ME group that is? Action for ME, can you tell us who is advising you in this matter?

I guess it could. I'm basing this on my experience with a physio in the early years (not of the GET variety). She had me doing various things including passive stretches and advocated using blocks, small cushions & rolled up towels to use as supports while resting. She wouldn't ask me if...

Wow. That was amazing! Thank you @Grigor & everyone involved.

I guess any physio worth their salt would ask questions about how you got on and what problems you had. Perhaps looking for comments about issues that you would only know about if you were doing the exercise. The issue with pretending to go along is that they will carry on pushing these...

Thanks @Mij. That's coming up at £35 for one month supply. That's even more expensive than the Jarrow 600mg one in the UK. The order has already been despatched so I might as well wait and see.

Great! I can guarantee they won't miss mine! I daresay, you also have to go and collect from somewhere that's a nightmare to get to so you can hand over the dosh. Oh well, it's already been despatched anyway.

Interesting. Thanks for that. I use slow release 2mg tablets on prescription. I've tried over the counter brands before and they made no difference at all. I find that with the slow release version I will sleep but then wake after about 5 maybe 5.5 hours. That's not quite enough. It will...

Ok. It's stupid o'clock in the morning and I am wide awake. I was told not to take melatonin continuously or it stops working. To be honest, even when it is working it just helps, not a magic cure. Right now I'm on a melatonin break. I just ordered some of this Jarrow sustained release NAC...

I think their logic is that if it were serious the patient would be dead already. Of course we could hop back on the roundabout and raise patient suffering and quality of life, but suffering is subjective etc.etc..:rolleyes:

A silver filling? Never heard of one if these before? I know the mercury amalgams look silver in colour when they are new. My dentist uses some sort of composite and we completely avoid mercury. All my fillings are the same colour as my teeth. It is slightly more expensive than the mercury...

I'm in the UK and with my dentist we discussed using a local anaesthetic without adrenaline. Epinephrin is based on the adrenalin molecule and both will constrict blood vessels around the site ofnthe injection. Depending on where you live you might need slightly different terminology. When I...

Maybe try downloading the app again @Little Bluestem ? It should appear as Kindle in the software list as far as I'm aware.

@Pechius that is a good point and many people are unaware that this is part of a much bigger picture. If you have a search within the forum there are a few threads that discuss or refer to:MUS=Medically Unexplained Symptoms, FSS=Functional Somatic Syndromes, PPS=Persistent Physical Symptoms...

Thank you for your work on the FOIs @AR68. I understand where you're coming from in terms of the size of contribution. However, from the perspective of claimants the size of benefits awarded in terms of PIP and ESA are huge, though they barely constitute a drop in the ocean of overall DWP...