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...and that's what they are counting on. It's deliberate.

Yes - the bloody irony. Increasing access to psych therapies when many patients with long term disorders have problems just getting access to the hospital clinics they need. Poor public transport, not enough car parking, paying for parking when on a limited income etc. Then there's the delay...

This link posted by @Amw66 gives background into the shenanigans. It places a lot of the blame on the conservatives , but I think New Labour are as responsible.

I think there is. It's not just Blairite, though it definitely became more noticeable, to me anyway, during this period of time. If my recollection is correct that is when the benefit system reforms started or became obvious.

It's also easy for medical professionals to judge others' stress levels by their own standards. Many people actually thrive on fairly high levels of stress in a work environment. I have had a neurologist claim that my job sounded very stressful - and it probably did to him. But over the...

Government rhetoric against the sick and disabled have played a massive part in how we are seen by society at large. All part of a campaign, as though they can penalize and shame us out of ill health and disability. It's clear to see how readily folk will jump on any old social media bandwagon...

:rofl::rofl::rofl: The irony is I tried ....I really did! I really thought doing all this type of activity plotting and planning to the very nth degree would make a massive difference.....

I also love the way they make it sound like it's some great new idea they've come up with! Nope some of us were doing that 20 years ago and we're still ill. In my opinion we don't need to reinvent the wheel, especially one that didn't really change much. Better work to on the PEM definition or...

Good luck with it @Webdog! Thanks for sharing. Will be very interested to hear what happens next.

If I read the toolkit initiative document, along the rather awful examples, I would be left thinking of ME as being a relatively minor condition where changing lifestyle would pretty much sort it out.

I lost a lot of weight quite slowly managing my gastro issues. I dunno exactly how much 'cause I don't own a scales. But I reckon I've lost at good 12inches from my waistline and dropped 4 or 5 dress sizes. Nearly everyone, including GP & practice nurse, has asked me if I feel better for it...

To be honest I didn't find keeping one very helpful. I found that I was focussing on symptoms all the time and ended up not enjoying the small things I could manage as I was always was thing the clock. Admittedly mine was more comprehensive -like the toolkit in the link in the most above.

You might find this thread to be of interest: https://s4me.info/threads/stanford-me-cfs-initiative-pem-avoidance-toolkit.2054

Thanks @Arnie Pye . I've had a quick scan through. Some of it may hold true for me, but not all. a lot of the foods they suggest to help actually cause me very severe stomach problems. I have a suspicion that in my case it's more likely to be something to do with the vagus nerve...

And that's a nasty little revenge for some of 'em. You don't improve, you won't even just say you've improved and they write to your GP telling them you just didn't put the effort in, or its purely psychological in your case etc etc. This follows you for the rest of your life. I know of one...

Interesting. My stomach is slow to empty (been tested) and I have noticed that ,occasionally,especially when It has been painful, I can actually feel it emptying. I just considered that to be part of gastropareisis. Worth a closer look to manage it better methinks.

Yeah, agreed @ Trish. They can be very useful and I don't want to seem like I don't agree with em. I do have one & I use it (though not necessarily all the time -as when I'm already in survival mode just doing what I have to and nothing else it doesn't really make any difference then). I got...

I fully understand the need to avoid PEM. But I also think we need to remember that avoiding PEM will not cure your ME. It may certainly stop you becoming more severe though. I have an issue with the use of HR monitors that I've mentioned elsewhere (please forgive if it feels like I'm banging...

Indeed. I wonder how they, and clinics here, classify people who drop out & simply disappear. My guess is if people just disappear they happily record that as being recovered. Rather than acknowledge that any benefits of going were quickly outweighed by the effort involved in attending ...

I notice that sensory overload is classed as emotional over exertion? Why? If I am in a noisy place - let's say the doctors waiting room where on the one hand I have to listen out for my name to be called but on other hand there are various conversations going on this is exhausting, but not...