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It's like the I, Daniel Blake film, that @Sly Saint kindly recommended somewhere. The guy is a widower, living alone. He has worked all his life and now has a serious heart problem. His doctors have told him he cannot go back to work yet. The DWP & benefits agency think otherwise. So he...

I wouldn't worry about it. I think you did remarkably well, it was a great email :hug: ETA - good to have corrected the mistake though.

Be warned, if you tell 'em the call is being recorded they are likely to terminate it. This would definitely go against your friend's best interests, I think. Yoou could raise it as a question for future reference maybe?

Presumably, they claimant has to attempt to comply to keep the benefit? They have to prove they have applied for the jobs. I seriously can't see anyone employing someone with the limitations. So this poor sod will be applying for jobs for X hours per week that they will never get...... As...

The sole point of this has to be the humiliation of the claimant.

. Now, I don't know that this is actually true: they used to say you needed to provide 2 identical tape recordings simultaneously, but I have heard that this is no longer the case. Two simultaneous digital recordings is acceptable. I'll see if I can find out more ETA: some further enquires...

Oppressive? Dictatorial? Authoritarian?

I tried it. It didn't work. It didn't even help, if anything it made matters worse.

....not sure @strategist .... You could say they "ride roughshod" over the patient. Meanig to treat harshly, domineer, override.....

@MEMarge you tell 'em girl! The fact is that the questions are written in such a way to elicit as little meaningful information about the claimant as they can get away with.

If at all possible, I'd record the call too. Easier to do it it's on speakerphone.

I think the threads we have on this show it could be done. In isolation it is very hard to remember all of the symptoms and triggers, but once someone else mentions it you remember. You add your tuppence worth and somebody else qualifies it. Triggering a new memory from yet another pwME...

Like you, I have always had some issues with sleep @Arnie Pye & @MeSci. Maybe not as severe, but I could be up for a couple of days. Then, given the chance, I'd sleep like the dead - they actually couldn't wake me. There were panes of glass over the tops of the bedroom doors in the house I...

No matter how I pace my underlying condition is unstable. Assuming we have energy available is small blocks or units (spoons if you will): A task that takes 1 unit of energy on a given day might take 5 units another day. Time of month, ambient temperature, levels of background noise among a...

I would use the term progressive for myself. I am slowly getting worse, but I dont know if any of my tissues or body systems could be described as degenerating. My initial course of illness was fluctuating but after the first 10 years seems to have become progressive. It still fluctuates...

Agreed. I have family members who were diagnosed with diabetes as children and these services were for kids who were struggling to adapt and were very supportive. But here's the twist: this IAPT is not necessarily just referring to this type of service. The way they plan to handle MUS will...

Yep. That could possibly be because the questions are deliberately phrased to elicit a certain response. Well...no, no comment. The guys have already put together a great critique on that. Just in case anyone missed it...

I think it's bound to. I havent met that many people with ME but of the people I have met: One died of cancer that was diagnosed very late - quite possibly because she already had a diagnosis of ME. At least her carer felt it was a factor. One was referred by her GP to a surgeon who spent...

Is it me, or is the whole sentence odd? It makes it seem almost as if being afraid to go to school, despondency and irritability are symptoms that carry more weight than the CDC definition. What do they mean afraid to go to school? Because they physically or cognitively can't cope, are...

Not quite gotten through all of this yet @Ryan31337. It's very interesting - I didn't realize that solids normally are processed through the stomach in about 2 hours. Now, I understand why they kept asking me was I sure I hadn't had a snack. My stomach still had food in it after a 6 hour fast.